Hey Cheryl, thanks for the post. I actually read your story a few years back when I was looking for information on lyme disease. My daughter contracted it when she was about three. She's still not 100%, but is much better off than she was initially. They misdiagnosed her for 6 months despite me begging three different doctors to test her for lyme. The poor thing got to the point where her joints were so inflamed she couldn't walk. Every band on her Western Blot came back reactive.
If you don't mind me asking, who is your doctor?