Anyone have any experience? This was Thing 1's preliminary diagnosis yesterday after seeing the audiologist.

Anyone have any experience? This was Thing 1's preliminary diagnosis yesterday after seeing the audiologist.
I can't even pronounce it. Does this mean the little guy will need hearing aids?

Anyone have any experience? This was Thing 1's preliminary diagnosis yesterday after seeing the audiologist.
Wiki explains it pretty well... Sensorineural hearing loss - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Sensorineural_hearing_loss)

That sucks. Make sure you get him in speech therapy. :ohwell:

Anyone have any experience? This was Thing 1's preliminary diagnosis yesterday after seeing the audiologist.

:huggy: This is the exact thing I am told to keep an eye on with Celie. Often kids with RTA develope it. I do know that the Charles County infants and toddler program offers sign language free to the entire family and that it is best to start now so they can learn while they still have hearing.
Distal renal tubular acidosis associated with isolated large vestibular aqueduct and sensorineural hearing loss | Article from The Annals of Otology, Rhinology & Laryngology | HighBeam Research (http://www.highbeam.com/doc/1P3-121331753.html)

I have a friend who has a little boy that was born deaf. His blog has a lot of links to information for parents of kids with hearing issues that might be of assistance to you.

Turn On My Ears! (http://turnonmyears.blogspot.com/)

Wiki explains it pretty well... Sensorineural hearing loss - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Sensorineural_hearing_loss)

That sucks. Make sure you get him in speech therapy. :ohwell:

He doesn't have ANY speech problems. The audiologist said it's probably only been a year or so since it began and that it will possibly get worse which is the sad part because he's at mild to moderate level now. Due to his age he is a great cantidate for hearing aides. We have to go to a ENT and probably have some genetic testing done.

He doesn't have ANY speech problems. The audiologist said it's probably only been a year or so since it began and that it will possibly get worse which is the sad part because he's at mild to moderate level now. Due to his age he is a great cantidate for hearing aides. We have to go to a ENT and probably have some genetic testing done.

Is he small? How has his growth been?

He doesn't have ANY speech problems. The audiologist said it's probably only been a year or so since it began and that it will possibly get worse which is the sad part because he's at mild to moderate level now. Due to his age he is a great cantidate for hearing aides. We have to go to a ENT and probably have some genetic testing done.
That is most certainly a bright spot in this, Pix... his speech development would have certainly been affected had it hit him earlier. I guess it's too soon to tell how far the hearing loss will progress, huh? :ohwell:

Thanks for the links all.

Is he small? How has his growth been?

He's tall and skinny as hell. Growth and development have been very normal.

That is most certainly a bright spot in this, Pix... his speech development would have certainly been affected had it hit him earlier. I guess it's too soon to tell how far the hearing loss will progress, huh? :ohwell:

I was fairly floored by the initial diagnosis. He failed his school hearing test last year and I took him to the peditrician who equated it to age and allergies. When his head gets stopped up it's like him putting his fingers in his ears. He did very well in school so I figured that was a good diagnosis. This year his teacher was concerned with his hearing and asked that he be tested again and after another failure I took him to an actual audiologist. I'm shocked that it's so bad because he's one of the most advanced in his class. I sent a thank you note to his teacher. I'm very glad we caught it now but am sad for him because we don't know if it will get worse and there is a potential for total hearing loss.

He's tall and skinny as hell. Growth and development have been very normal.
Good to hear! If you think about it get his co2 checked. That's just the RTA mom in me coming out though. I know you are skinny so that's not a huge flag but something to look into.

I was fairly floored by the initial diagnosis. He failed his school hearing test last year and I took him to the peditrician who equated it to age and allergies. When his head gets stopped up it's like him putting his fingers in his ears. He did very well in school so I figured that was a good diagnosis. This year his teacher was concerned with his hearing and asked that he be tested again and after another failure I took him to an actual audiologist. I'm shocked that it's so bad because he's one of the most advanced in his class. I sent a thank you note to his teacher. I'm very glad we caught it now but am sad for him because we don't know if it will get worse and there is a potential for total hearing loss.
Is it an equal loss in both ears?

Is it an equal loss in both ears?

Pretty much. It was within 5 decibles.

Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.

I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.

However, if you want, I can teach you and your boy sign language. Just let me know what you want to do. :huggy:

Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.

I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.

However, if you want, I can teach you and your boy sign language. Just let me know what you want to do. :huggy:


Teach me Teach me!!! I have always wanted to learn and now more so I can talk to you and not write - my hand hurts!!!!!

My son's father suffered progressive hearing loss from a fever and infection when he was 2 years old. It took 30 years to lose all of his hearing and he has to wear these super sonic hearing aids now. He has not speech problems and can play guitar as good as anyone with good ears.
We keep close tabs on my sons hearing because of this and his susceptibility to ear infections. My son has only the slightest hearing loss and the doctors haven't indicated that we worry about it since he's outgrown the ear infections.

Good luck hon:huggy:

Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.

I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.

However, if you want, I can teach you and your boy sign language. Just let me know what you want to do. :huggy:

You could never hear? Wow. You probably told me, but you pronounce so well that I guess I forgot. :yay:

Teach me Teach me!!! I have always wanted to learn and now more so I can talk to you and not write - my hand hurts!!!!!

I would love to teach you. :huggy:

Yeah, my hand hurt from writing too. :lol:


I would love to talk in sign language with you that no one would know what we are talking about. :whistle:

You could never hear? Wow. You probably told me, but you pronounce so well that I guess I forgot. :yay:

I meant that I never hear because I was born deaf. I have no idea what it was like to be able to "hear" like hearing people do. People keep asking me "what it is like to be deaf?" and "What sound do you miss the most and why?" I have no idea how to answer these type of questions since I was never able to "hear".

I can hear with hearing aids, but I'm sure the sounds aren't normal like the way hearing people hears it.

Yeah, I know I pronounce so well, but I got you fooled. :lol: There are some words I could not prounounced at all. People would hear me misprouncing the words and get a kick out of it by laughing so hard. For example, back in 1999, I asked a co-worker for a disk and she thought I was asking for "Dick". She asked me why I wanted a "penis" for. :yikes: :blushing: I couldn't do "s" very well.

I meant that I never hear because I was born deaf. I have no idea what it was like to be able to "hear" like hearing people do. People keep asking me "what it is like to be deaf?" and "What sound do you miss the most and why?" I have no idea how to answer these type of questions since I was never able to "hear".

I can hear with hearing aids, but I'm sure the sounds aren't normal like the way hearing people hears it.

Yeah, I know I pronounce so well, but I got you fooled. :lol: There are some words I could not prounounced at all. People would hear me misprouncing the words and get a kick out of it by laughing so hard. For example, back in 1999, I asked a co-worker for a disk and she thought I was asking for "Dick". She asked me why I wanted a "penis" for. :yikes: :blushing: I couldn't do "s" very well.

There are some words that I have a hard time pronouncing, and I have full hearing. :huggy:

I love your stories!! :roflmao:

I would love to teach you. :huggy:

Yeah, my hand hurt from writing too. :lol:


I would love to talk in sign language with you that no one would know what we are talking about. :whistle:
why not start a class once a week or so, I would LOVE to learn sign. there are people at my church that I cant talk to, and Im just betting that they are interesting as can be.

I bet you could even make a business of it... after you teach us.

she thought I was asking for "Dick". She asked me why I wanted a "penis" for. :yikes: :blushing: I couldn't do "s" very well. damn good thing you didnt ask me when I was drinking...

seriously though, I had no problem understanding you at the camp thing.
to be honest, until someone else mentioned it, I had no clue you had hearing loss

There are some words that I have a hard time pronouncing, and I have full hearing. :huggy:

I love your stories!! :roflmao:

:lmao:

Glad you liked my stories. :lol:

why not start a class once a week or so, I would LOVE to learn sign. there are people at my church that I cant talk to, and Im just betting that they are interesting as can be.

I bet you could even make a business of it... after you teach us.

Start a class once a week for the forumites? That might be a good idea.

Yeah, I know I could make a business of it, and I will need to brush up on my sign language before I start a business. There's sign language classes at the community colleges, county's sports and activities center, etc.

I know there's an adult sign language class and "Baby and Infant" sign language class in this county. I know both of the instructors that are teaching those classes. :yay:

damn good thing you didnt ask me when I was drinking...

seriously though, I had no problem understanding you at the camp thing.
to be honest, until someone else mentioned it, I had no clue you had hearing loss

:lol:





Thanks. Glad to know that I speak very well. :buddies: Now, who mentioned that I was deaf? :mad: :lol:

thats ASL right?

thats ASL right?

Yes, the American Sign Language (ASL). They are the BEST! Easy to use, but it can be very confusing. You'll see why when I or someone show you.

:lol:





Thanks. Glad to know that I speak very well. :buddies: Now, who mentioned that I was deaf? :mad: :lol: oh no, you are not getting me involved with another delete my account thread... :killingme:

oh no, you are not getting me involved with another delete my account thread... :killingme:

:killingme:

Yes, the American Sign Language (ASL). They are the BEST! Easy to use, but it can be very confusing. You'll see why when I or someone show you.
dont mean to sound ignorant but.
people with perfect hearing are not the best at teaching the signing.
those that depend on it for daily life are better for some reason. Maybe because they take it more seriously?
I have no clue what it is not to hear. I have no clue how important it is to communicate with hands instead of mouth.

I would like to be able to step in for the woman that does the sign at our church services, she tried to teach once but nobody got it.

dont mean to sound ignorant but.
people with perfect hearing are not the best at teaching the signing.
those that depend on it for daily life are better for some reason. Maybe because they take it more seriously?
I have no clue what it is not to hear. I have no clue how important it is to communicate with hands instead of mouth.

I would like to be able to step in for the woman that does the sign at our church services, she tried to teach once but nobody got it.

Understandable. That's true that some people with perfect hearing aren't the best teacher for teaching sign language. However, there are some are really good at it. For example, one of my friends have interpreting degree and certification and she can hear. Her aunts, uncles, cousins, etc. are deaf, and that's why she can sign so well. I thought she was deaf when I first met her because she signed so well for a hearing person.

Also, there are alot of hearing adults out there signs so well because they have deaf parents and grew up using ASL all of their life. So, don't rule out perfect hearing adults when it comes to teaching sign language. Check out their background first before making a decision.

The lady at the church may be called a "signer". She's never really learned proper sign language and called herself as an "interpreter", but she's not. A "signer" are Wanna Be Interpreters for the deaf. They don't know anything about code of ethics, acts like they know everything, scolding at the deaf adults for doing something that was wrong, etc. A real professional interpreters would NOT scold deaf adults, would not treat the deaf like they are an idiots, and will not break the confidential of doctor/patients information to other deaf people in the community.

Ever since I had problems with the "signers", I've complained to college and gotten a professional interpreters since then. I also made sure that all interpreters at my doctor appointments, college courses, etc. must be a professional interpreters. I checked their background out first.

It's very important to communicate with hands because it is alot easier to understand than trying to lip read that gives me headache and blurry vision from being overtired and overworked. Lip reading is a very hard skilled that I have gained since I was born. No one taught me how to lip read. I just did it. I've people asking me to teach them how to lip read and I was like "Uh, I don't know how to teach it." I guess people have to be deaf to be able to learn how to lip read.

NOTE: Not all deaf people can lip read. I know several of deaf people can not lip read at all because they have never been around hearing people in their entire life until they graduated from school for the deaf to work in the hearing world and they feel very lost and frustrated. It's very understanable. They never had to learn because they have deaf family and attended school for the deaf and there was no need to learn to lip read.

I would LOVE to see you to be able to sign fluently and step in for a woman at the church to help as a team. Church is a place that is okay for a "signer" or volunteers to help with signing the lectures and songs.

I wish I could attend the church services on Sundays, but none of the Methodist Churches have volunteer interpreters/signers. However, almost all Catholic Church have interpreters/signers in this area. I don't want to go to Catholic Church just for an interpreter/signer. :ohwell:

Hey,
I have the samething as your son has. I'e been heard of hearing since birth, though. However, I assure you that if he has good verbal skills right now he will more than likely keep them. I had really good verbal as a kid and now you can't tell I'm HoH at all if I talk to you. But if you suspect he will have problems, I really do believe in a combination of speech therapy and ASL classes. That way he has a choice between which will feel more comfortable for him when he is older and if his hearing loss progresses to such an extent that he might rely on sign.
Also, I think I would have profitted as an HoH kid if I had known some Deaf/Heard of Hearing adults. If there are ny Deaf groups in the area, maybe you could find someone to be a mentor to him?
You also might check out the camp I worked at over the past summer, which is in Nanjemoy in Charles County. It's called Lion's Camp Merrick and i runs 3, one-week Deaf Camp sessions, but while a lot of the Deaf staff relies heavily on ASL, many are hearing and can so communcate verbally if he doesn't know sign yet. It really does encourage all campers to work on their signing skills, whether they are Deaf, Hard of Hearing, or Hearing sisters/brothers of Deaf kids.
I hope this helps! If you have any questions, let me know!

Anyone have any experience? This was Thing 1's preliminary diagnosis yesterday after seeing the audiologist.
Sorry to hear about his ears.

Pixie, sorry to hear about your son's hearing. I have progressive nerve deafness too. I have not lost all of my hearing yet and am using a hearing aid in my left ear. The loss is not always swift. Maybe something new will come along in your son's lifetime too that can help him.

Strawberry Girl, I would like to learn sign too. I do pretty well at lip reading but I think sign is an awesome and beautiful way to speak and hear as well as a more universal way!