Pots...

[TimAllen]

Originally Posted by water123

yes, I think it is different from PAN syndrome ...although i've been looking on forums and see that some people whom have POTS also have PAN.

I did look for a pan syndrome and only thing I found was Peter Pan Syndrome.

[IrishGal]

Originally Posted by pcjohnnyb

Yep. I've got it.

How can I help you?

Hey Johnny I'm back! Will cookies help it?

[water123]

PCJohnnyb... can I ask how old are you? and how long did you have it for? I've had it for a month and the docs said I'm going to be off another month. I've had a few good days..then the rest are bad...it just doesn't make sense to me! they said it usually happens in teenagers/adults between the ages of 14-30. I just want to learn as much as I can about it! Where were you diagnosed at?

[pcjohnnyb (Premo)]

Originally Posted by water123

PCJohnnyb... can I ask how old are you? and how long did you have it for? I've had it for a month and the docs said I'm going to be off another month. I've had a few good days..then the rest are bad...it just doesn't make sense to me! they said it usually happens in teenagers/adults between the ages of 14-30. I just want to learn as much as I can about it! Where were you diagnosed at?

I am 18...had it...when i was...uhhh??? 16 maybe?? its been a couple years.

Diagnosed at John's Hopkins medical. I dealth with it for a good year, year and a half I'd say...but keep in mind I experienced two disorders at the same time.

[water123]

Yes, I was diagnosed at Johns Hopkins as well.
Gosh, I hope i dont feel crappy for that long.
I'm in my mid 20's.
Thank you for the great info.

[pcjohnnyb (Premo)]

Originally Posted by water123

Yes, I was diagnosed at Johns Hopkins as well.
Gosh, I hope i dont feel crappy for that long.
I'm in my mid 20's.
Thank you for the great info.

You'll be fine. Just stay optomistic

I sent you karma saying this, but feel free to PM me any questions you may have ok? I'll do my best to help you as best as I can because I've been there, done that.

[PsyOps]

Originally Posted by water123

Has anyone heard of POTS syndrome in this area or have it?
It stand for Postural Orthostatic Tachycardia Syndrome.
Please let me me know!

I may have missed it but did you have a battery of tests, CT scans, etc... done to determine any other causes of your symptoms; such as tumors on any of your glands? My wife had a tumor on her adrenal gland (pheochromocytoma) that causes many of the same symptoms as POTS (it was benign BTW). Once she had this removed her symptoms (to include her high blood pressure) went away.

[water123]

Yes, i've had all the testing done...they said everything came back normal!