Juvenile Rhematoid Arthrits

[virgovictoria (Premo)]

I was actually "tested" for Juvenile RA when younger.

Never tested for Lyme's.

I believe the dx was something like 'joints are extremely sensitive to barometric pressure changes, the pain from which may cause overall fatigue...

This was Malcolm Grow in the 70's.

I just recall my mom constantly rubbing my legs and knees for me and my elbow/wrist joints and often putting Ace bandages on for comfort. It was horrible.

And, my family has significant hx of RA, though I've never followed up on the relevance of juvenile onset.

I hope your Toxlet feels better and finds comfort soon.

[vraiblonde]

Best wishes to Little Tox, not to mention Mom and Dad.

[Christy]

Originally Posted by doubtfull24

I took antibiotics for 30 days but that didn't help so I had to have a pic line " IV " put in my arm and was on daily rocephin antibiotic treatment for 4 months straight. That helped for awhile but not to long after stopping the antibiotics the pain came back in my joints and back and my ankles and wrists. I don't feel like I'm in a fog as much but I still get the headaches a few times a week. I have arthritis in all of my joints and when I move my arms you can hear my joints crack and pop my hips do the same thing.

My daughter had lyme that was misdiagnosed for 6 months. We managed to find a wonderful doctor who knew how to properly treat lyme. He kept her on antibiotics until she went two months without any lyme symptoms which was 9 months total on antibiotics. If you want his information, shoot me a PM. It's been several years since we've been to him, but I believe he is still around.

[Toxick]

The good news is the doctor doesn't think she has arthritis.

The bad news is that the doctor doesn't know WTF she has, if anything, or what to do about it, and therefore didn't do a ####ing thing.

She suggested a pinched nerve, but that sounds like a load of crap to me. I've had pinched nerves before. It wasn't like that.


So now I have a child here who's perfectly normal, and runs around the house like a maniac, jumps around, plays with dolls and makeup, and toy ponies and princesses... except that when she sits on the potty she needs someone to come pick her up because she can't stand up. If it weren't for the possibility of deterioration, we could simply deal with that at home - but suppose she's at school and gets stuck on the commode. We're going to take her to an arthritis specialist, because this is not acceptable.

And if it turns out there is no arthritis, I have no idea what to do next.

[Geek]

Originally Posted by Toxick

The good news is the doctor doesn't think she has arthritis.

The bad news is that the doctor doesn't know WTF she has, if anything, or what to do about it, and therefore didn't do a ####ing thing.

She suggested a pinched nerve, but that sounds like a load of crap to me. I've had pinched nerves before. It wasn't like that.


So now I have a child here who's perfectly normal, and runs around the house like a maniac, jumps around, plays with dolls and makeup, and toy ponies and princesses... except that when she sits on the potty she needs someone to come pick her up because she can't stand up. If it weren't for the possibility of deterioration, we could simply deal with that at home - but suppose she's at school and gets stuck on the commode. We're going to take her to an arthritis specialist, because this is not acceptable.

And if it turns out there is no arthritis, I have no idea what to do next.

Is it always on the toilet?

[SoMDGirl42 (Premo)]

Originally Posted by Toxick

The good news is the doctor doesn't think she has arthritis.

The bad news is that the doctor doesn't know WTF she has, if anything, or what to do about it, and therefore didn't do a ####ing thing.

She suggested a pinched nerve, but that sounds like a load of crap to me. I've had pinched nerves before. It wasn't like that.


So now I have a child here who's perfectly normal, and runs around the house like a maniac, jumps around, plays with dolls and makeup, and toy ponies and princesses... except that when she sits on the potty she needs someone to come pick her up because she can't stand up. If it weren't for the possibility of deterioration, we could simply deal with that at home - but suppose she's at school and gets stuck on the commode. We're going to take her to an arthritis specialist, because this is not acceptable.

And if it turns out there is no arthritis, I have no idea what to do next.

I guess that why the call medicine "practicing medicine". I would take her somewhere else to get the answers you need. Sounds like something is going on. I'm surprised they didn't do any lab work, at least a SED Rate or an RA Factor. What's a little bit of bloodwork going to hurt? or possibly an x-ray to check her joints. Was this the regular pediatrician? How old is she again?

Hope all checks out and it's just growing pains or something. Until you know for sure, keep playing her advocate until you get a correct diagnosis. for toxlot.

[vraiblonde]

Originally Posted by Geek

Is it always on the toilet?

And where does she hurt that she can't get up - in her knees/hips or on the back of her leg near her rump?

[Toxick]

Originally Posted by Geek

Is it always on the toilet?

Seems to be.

[Toxick]

Originally Posted by vraiblonde

And where does she hurt that she can't get up - in her knees/hips or on the back of her leg near her rump?

Mostly knees. Seems to be the hips and shin too.

[Christy]

Originally Posted by Toxick

The bad news is that the doctor doesn't know WTF she has, if anything, or what to do about it, and therefore didn't do a ####ing thing.

She suggested a pinched nerve, but that sounds like a load of crap to me. I've had pinched nerves before. It wasn't like that.


And if it turns out there is no arthritis, I have no idea what to do next.

It probably is a load of crap. I know I'm : but insist she be checked for lyme. I had to fight with 4 different pediatricians just to get one of them to finally run 2 sets of lyme tests. Lyme disease is rampant in this area. Even if you think she's never had a tick get her checked. The deer ticks are so small, they are easy to miss.