Lymes Disease

[popsicle]

Originally Posted by Jameo

Rocephin twice a day 4 days per week. Then Flagyl orally 3 times a day for the other 3 days.

[popsicle]

I have not missed a day of work yet. I have had my PICC in for a little over a month.

Originally Posted by hotcoffee

I understand that it's the toxins washing out of the system. The toxins are the dead things invading our bodies that the treatment is killing. I get that... I need to plan to be sick [if that makes sense]. If everyone else was out of work for a day... that's cool... but if it's a week... I need to plan that.... know what I mean?

[Jameo (Premo)]

Originally Posted by hotcoffee

I understand that it's the toxins washing out of the system. The toxins are the dead things invading our bodies that the treatment is killing. I get that... I need to plan to be sick [if that makes sense]. If everyone else was out of work for a day... that's cool... but if it's a week... I need to plan that.... know what I mean?

I don't think that is something you can really plan for

[ShyGirl]

Found this on LymeNet.Org

Document Title: Re: IV Claforan vs. Rocephin?

Just curious, why does it have to be either Rocephin or Claforan. If you have already tried Rocephin, and at 4 grams,hmmm...that does not sound like enough time to be on IV at all. 6 weeks, thats it! How about 6 months would be more like it. I took Claforan, 12 grams a day, split 4 grams each 3x a day, made my stomach hurt, but works really well. I was herxing so bad back then its all a blur. I hightly recommend IV Zithromax, its done miracles for me. Its much less pain on the belly, and its easy, one hour per day, and it stays inyour blood for a few days after each dose of IV, so you dont have to infuse on weekends.
I have been on IV Zithro for 4 months and it has made huge improvements. There are other IV's as well, IV Vancomycin, Doxycycline, Primaxin, etc. Also IM Bicillin is very strong stuff.

You have to watch your gall bladder on Rocephin, and your liver and stomach on Claforan, Zithro=no problems!

[Jameo (Premo)]

Originally Posted by ShyGirl

Found this on LymeNet.Org

Document Title: Re: IV Claforan vs. Rocephin?

Just curious, why does it have to be either Rocephin or Claforan. If you have already tried Rocephin, and at 4 grams,hmmm...that does not sound like enough time to be on IV at all. 6 weeks, thats it! How about 6 months would be more like it. I took Claforan, 12 grams a day, split 4 grams each 3x a day, made my stomach hurt, but works really well. I was herxing so bad back then its all a blur. I hightly recommend IV Zithromax, its done miracles for me. Its much less pain on the belly, and its easy, one hour per day, and it stays inyour blood for a few days after each dose of IV, so you dont have to infuse on weekends.
I have been on IV Zithro for 4 months and it has made huge improvements. There are other IV's as well, IV Vancomycin, Doxycycline, Primaxin, etc. Also IM Bicillin is very strong stuff.

You have to watch your gall bladder on Rocephin, and your liver and stomach on Claforan, Zithro=no problems!

I get blood work done once a week. They check liver, gall bladder, H&H and I think a few other things. Red or white blood cell count too maybe.

[lisa8439]

Originally Posted by hotcoffee

I understand that it's the toxins washing out of the system. The toxins are the dead things invading our bodies that the treatment is killing.

I've had lyme twice - the first time was a doozy and went undiagnosed for years... after my treatment (which lasted over a year) I am of the opinion that the antibiotics kill off the toxins - but you need to flush them out. So you have all of these dead toxins in your body (which still make you sick) - how do you get them out?? The antibiotics do nothing for that... yes, they kill the toxins... and some of them will come out naturally, but a lot of them bind to other things in your body and STAY there until you flush them out.

Just my opinion, and I had to end up seeing another doctor AFTER I had the IV antibiotics for over 8 months... he was sort of 'alternative' but his plan worked and I felt like a champ after 3 months of his regimen that supposedly flushed the dead toxins out (NOT antibiotics... it was some cholesterol medicine that binded to the toxins and then you eliminated them, KWIM?) Here is his website if anyone is interested:
VCS Test Center by ChronicNeurotoxins, Inc. Lyme Disease Information
(*note* I am not affliated with the guy - actually, I didn't care for him at all as a person But his regimen did work.... and my insurance covered my visits to him, so it's not like he is some stand alone money making guy. The vision test does cost a little bit of money, but it was absolutely invaluable to me when I was still having problems with lyme after almost a year of treatment...)

The antibiotics just didn't do it for me - sure I felt better, but I still had problems from the other dead toxins that were in my body.

You are taking the right course first - you have to do the antibiotics... but that isn't always the end of the road.

[hotcoffee]

Originally Posted by popsicle

I have not missed a day of work yet. I have had my PICC in for a little over a month.

I'm so glad to hear that.

Originally Posted by Jameo

I don't think that is something you can really plan for

Normally being sick is something I wouldn't plan but if I know I might be sick [due to the herxing] then I could give my boss the heads up and plan my regular work accordingly....

I do get your point... thanks...

[ShyGirl]

When I told my boss what was going on with me, he suggested that I file a FMLA (Family Medical Leave Act) claim to protect my job in case I need to take unplanned leave from work. I signed up for Intermittant Leave which provides coverage for up to a year and allows me to take days when I need them.

I have CareFirst Blue Cross Blue Shield coverage and also requested to have a Case Manager assigned. They have been helpful so far and try to coordinate their calls after my appointments in case I have lingering questions.

[hotcoffee]

Originally Posted by ShyGirl

When I told my boss what was going on with me, he suggested that I file a FMLA (Family Medical Leave Act) claim to protect my job in case I need to take unplanned leave from work. I signed up for Intermittant Leave which provides coverage for up to a year and allows me to take days when I need them.

I have CareFirst Blue Cross Blue Shield coverage and also requested to have a Case Manager assigned. They have been helpful so far and try to coordinate their calls after my appointments in case I have lingering questions.

I hadn't thought of this... thank you so very much... will do.

[DoWhat]

I had the surgery today for the Groshong install.
Went well I guess, since I'm back at the house.
Chest is a little sore.
Start IV antibiotics tomorrow.