Say a prayer for hubby

[teverheart2002 (Premo)]

[Dougstermd (Premo)]

Originally Posted by Pasofever

Your Pmer is full....Mom ate here thats the thing just did cough some...she was sitting up here...all day...she walked to the potty with help to change her diaper..she has been in bed they have not gotten her up since Wed so I am sure I am set back there..Mom would not like to live like this...she has told me...I almost did the tube then I thought I was doing something she would not like and would be mad at me for. If she had her way she would have been "put to sleep like a dog/horse long ago" They said she could have 6 months or longer I hope for her sake it is shorter..I cry just typing this..

...

I get teary eyed every time I check in on this fread. Lordy woman you sure got a full plate.

[spinner]

Paso, we had Hospice when my mom got sick and they were wonderful, I can't say enough nice things about them. Don't be worried about calling them for anything. Put their number where you can see it and remember who they say to call and when, that's important. I've just been through this, it is hard, but in the end it was an honor to be there. If you want to talk, call me I understand what you are going through.

[bcp (Premo)]

Originally Posted by Dougstermd

I get teary eyed every time I check in on this fread. Lordy woman you sure got a full plate.

That is no lie.
I would have cracked by now if it were me.

[Pasofever (Premo)]

Originally Posted by belvak

Paso, hope things are going okay for you today. Good luck tomorrow when you talk with the neuro docs. Your for the day!

I called the hosp right before I answered this thread...his temp is up most of the time...it is down right now to almost 100 which is low for how he has been running..They moved the intubation tube to a trache in the neck a few days ago..they did him off 2 hrs a day for a couple days then for a whole day..he is now most of the time breathing on his own...He is not responding though still they say...though he did open his eyes for me and turn his head toward me the other day..but a look like no one was home...We go tomorrow to meet with everyone for the prognosis etc...I am thinking about talking about some serious decisions tomorrow so we will see...

Originally Posted by BS Gal

Are they coming out to evaluate her or will they be coming on a scheduled basis to help out?

They talked to me at the hospital...they excepted her...She is doing GREAT today...she has been up since 9 am and I am getting her ready for bed now..she has drank like a pig all day like 6 glasses of different stuff....She has been bright and alert..watched TV etc...I am sure she did not like the 5 days in the bed..she is used to being up ALL the time...Hospice called today but I was working so I will call them back tomorrow...Mom even walked to the potty for me today from the wheel chair 4 steps..as always...lifted her legs for her diaper...just like always...they tried to give me pills to calm her down I never filled them..they are crazy..she just does not like strangers...lol...I am real happy with how she looks etc...so I am calmer....and did with less pink pills for myself today...

Originally Posted by spinner

Paso, we had Hospice when my mom got sick and they were wonderful, I can't say enough nice things about them. Don't be worried about calling them for anything. Put their number where you can see it and remember who they say to call and when, that's important. I've just been through this, it is hard, but in the end it was an honor to be there. If you want to talk, call me I understand what you are going through.

I will call you Barb...thanks I have heard nothing but nice things for sure...they got me a new bed side commode today..I had an old one but was missing the tub part..so I have 2 one for the bathroom and one for the bed room...I have a friend giving me a dresser to put her extra stuff in now as most of her stuff is in the bathroom but when she gets so I have to do her in the bed room I need room for stuff..I need a few more things but I will work on it...mostly need to rearrange stuff and get room..

Originally Posted by bcp

That is no lie.
I would have cracked by now if it were me.

Remember I had that last Thursday the day after mom went to the hospital..I had high blood pressure, migraine and had to cancel dogs..they kept me a few hours and then said it was stress...then I went to my family dr and they gave me a cute pink pill...seems to help..but over all I am happier with mom home...

I have had mom here since 1996 and I have been with Bill for 25 or 26 yrs..so with both gone I was a mess..mom does not talk to me..Bill will not shut up..I do not think we have even been a day or two without talking even if one is out of town..so for me not to talk or yell at him for 2 weeks it is getting depressing..I really do not feel good about this at all... thanks all...

Ps a friend filled my fridge with read to eat home cooked food..I am eating well..thanks guys..I love ya...well most of ya...

[godsbutterfly]

Originally Posted by Pasofever

I called the hosp right before I answered this thread...his temp is up most of the time...it is down right now to almost 100 which is low for how he has been running..They moved the intubation tube to a trache in the neck a few days ago..they did him off 2 hrs a day for a couple days then for a whole day..he is now most of the time breathing on his own...He is not responding though still they say...though he did open his eyes for me and turn his head toward me the other day..but a look like no one was home...We go tomorrow to meet with everyone for the prognosis etc...I am thinking about talking about some serious decisions tomorrow so we will see...



They talked to me at the hospital...they excepted her...She is doing GREAT today...she has been up since 9 am and I am getting her ready for bed now..she has drank like a pig all day like 6 glasses of different stuff....She has been bright and alert..watched TV etc...I am sure she did not like the 5 days in the bed..she is used to being up ALL the time...Hospice called today but I was working so I will call them back tomorrow...Mom even walked to the potty for me today from the wheel chair 4 steps..as always...lifted her legs for her diaper...just like always...they tried to give me pills to calm her down I never filled them..they are crazy..she just does not like strangers...lol...I am real happy with how she looks etc...so I am calmer....and did with less pink pills for myself today...



I will call you Barb...thanks I have heard nothing but nice things for sure...they got me a new bed side commode today..I had an old one but was missing the tub part..so I have 2 one for the bathroom and one for the bed room...I have a friend giving me a dresser to put her extra stuff in now as most of her stuff is in the bathroom but when she gets so I have to do her in the bed room I need room for stuff..I need a few more things but I will work on it...mostly need to rearrange stuff and get room..



Remember I had that last Thursday the day after mom went to the hospital..I had high blood pressure, migraine and had to cancel dogs..they kept me a few hours and then said it was stress...then I went to my family dr and they gave me a cute pink pill...seems to help..but over all I am happier with mom home...

I have had mom here since 1996 and I have been with Bill for 25 or 26 yrs..so with both gone I was a mess..mom does not talk to me..Bill will not shut up..I do not think we have even been a day or two without talking even if one is out of town..so for me not to talk or yell at him for 2 weeks it is getting depressing..I really do not feel good about this at all... thanks all...

Ps a friend filled my fridge with read to eat home cooked food..I am eating well..thanks guys..I love ya...well most of ya...

Paso,

What "Spinner" said is so true. We had Hospice for my Mother as well when she was at the end of her Leukemia battle and they truly can be such a blessing. Don't be too proud or stubborn to take their help. Caregivers need to be given care as well. God bless you and your family.

[Tigerlily]

I so admire you and your strength in these difficult times. I can also understand your mom not liking strangers. It must be hard to grow older and to have to rely on others, then to add strangers to the mix goes to a whole other level.

If there is anything you need, please post it. I do not have any experience with what you are dealing with, but if you need someone to run to the store for you or anything else please let me know.

I admire you in so many ways and only wish that there will be happier times ahead.

[ImAChvyGirl]

Daily hugs

[my-thyme]

still thinking of you and yours...

[RareBreed]

It's been awhile since I gave you some

I hope things get better for you.