Putting it here for more views:please help i.d. this illness

gretchen

New Member
My sister is 39. She had surgery late last summer and a day or so later,she noticed a small rash on one leg. About the size of a quarter,and it looked like tiny pinpricks.Like thousands of tiny blood dots of that makes sense. She figured maybe she got pinched or something while being moved during the procedure. It was a quick day surgery,but with general anesthesia. The rash has stayed there but fades and then reappears.

Fast forward to now.She had a second surgery earlier this year,but it was more involved,also with general anesthesia. The original rash is still there,but about 8 weeks into recovery she walked past a mirror and saw that there was lots more of this same rash. No itch,you'd only know if you saw them.They are only on her upper thighs and lower abdomen. All about the size of a quarter,and all with the odd speckled appearance.

She has also been having increasingly severe numbness and pain in her elbows,forearms,and hands. This gets worse at night and wakes her up,and when she is doing detail type work like typing,picking crabs,sewing,etc. It isn't constant and usually correlates to doing something with her hands or having her arms flexed at night. She is exhausted after minimal walking-a half mile wipes her out,and has almost daily headaches.

She has seen three regular doctors who have said this is : "don't know",eczema,carpal tunnel,and ringworm. She had a very large,suspect rash several years ago and was tested for Lyme,and had two bands come back positive,but the dr. said it was not enough and we forgot about it. At this point,she is supposed to see the neuro for an emg. So after this long ass post,the question is could this be Lyme? Can it go away and come back? Can it not show on a test? Or does anything about this ring a bell for anyone? We asked about it coming from the surgeries - they were both gyn type - but have been told no. I just spent a very frustrating day in DC with her to be sent home with Benadryl. WTF. I'll post pics of these rashes once she sends me some. In case you're wondering,we are waiting on a dermatologist appointment.
 

Restless

New Member
I have had similar "rashes" but they did disappear. Not sure what they were but they were just like your sisters's. Very odd. A friend of mine was told by a doctor here in St. Mary's that she had Lyme disease. This frightened her as she has many health problems. She ended up going to an Infectious disease specialist in Prince Frederick. Best move she could have made. She did not have Lyme disease, but something else which, unfortunately, I can't recall. :(
 

vraiblonde

Board Mommy
PREMO Member
Patron
From what I've seen posted here by other members who've had it, sounds like lyme disease.

That was my first thought. A friend, who can ID herself on here if she wants, had an odyssey with her daughter who had Lyme disease but the doctors didn't diagnose it right away and went through stupid trying to treat it.

Doctors call what they do a "practice" for a reason.
 

mamatutu

mama to two
That was my first thought. A friend, who can ID herself on here if she wants, had an odyssey with her daughter who had Lyme disease but the doctors didn't diagnose it right away and went through stupid trying to treat it.

Doctors call what they do a "practice" for a reason.

It is a shame if it is Lyme disease. There is a vaccine for our pets, but not for humans. I don't get that.
 

mamatutu

mama to two
Advice - consult a qualified physician, not a message board full of ... well what ever we are :)

It is called a second opinion. :lol:

But, seriously, one should never go by what one doc says. Gretchen has said they are trying to go to diff docs. Docs are human, too, which makes them fallible. This forum has solved questions before :shrug:
 

Lurk

Happy Creepy Ass Cracka
Skin rashes and changes are normally diagnosed by visual inspection, biopsy, observation over time, and laboratory studies. Erythema Chronicum Migrans (ECM), the rash associated with Lyme disease, is seen in about 80% of cases. The description of a 'quarter-sized' punctate rash that remains, is not duplicated, and which does not change in size, distribution or presence over time doesn't sound like ECM. The distribution of the second rash suggests a reaction such as a contact dermatitis or infection. If the rash is still present, a dermatology evaluation would be appropriate. The distal arm findings may be coincidental but deserve an evaluation if troublesome or progressive.
 

PsyOps

Pixelated
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Lurk

Happy Creepy Ass Cracka
[video=youtube;WROdwlk9_h8]https://www.youtube.com/watch?v=WROdwlk9_h8[/video]
 

libertytyranny

Dream Stealer
Im assuming they did bloodwork so that leukemia has been ruled out. Lyme is a suspect, but I am a little concerned it has become a bit of a scapegoat. Also, if noticed around surgeries, was she starting or stopping medications? Morphine (and related drugs) especially can cause petechiae, the rash you describe; as well as rebound headaches and fatigue. Was she checked for other tick bornes like rocky mountain spotted fever?
 

gretchen

New Member
Im assuming they did bloodwork so that leukemia has been ruled out. Lyme is a suspect, but I am a little concerned it has become a bit of a scapegoat. Also, if noticed around surgeries, was she starting or stopping medications? Morphine (and related drugs) especially can cause petechiae, the rash you describe; as well as rebound headaches and fatigue. Was she checked for other tick bornes like rocky mountain spotted fever?

Actually leukemia was brought up by us,and we were told that the white cells are normal on the CBC,so don't worry about it. She was on morphine in the hospital the second time,none the first time. For both surgeries she recovered with Tylenol only. The neuro said Rocky Mountain wasn't her thing,so go to yet another doc if she wants to be tested for that.
 

BernieP

Resident PIA
It is called a second opinion. :lol:

But, seriously, one should never go by what one doc says. Gretchen has said they are trying to go to diff docs. Docs are human, too, which makes them fallible. This forum has solved questions before :shrug:

the worst possible advice will come from a bunch of half baked idiots who don't have access to even a first hand view of the site.
It's like reading the symptoms online, my god, you have every disease known to human kind when you do that.
 

libertytyranny

Dream Stealer
Actually leukemia was brought up by us,and we were told that the white cells are normal on the CBC,so don't worry about it. She was on morphine in the hospital the second time,none the first time. For both surgeries she recovered with Tylenol only. The neuro said Rocky Mountain wasn't her thing,so go to yet another doc if she wants to be tested for that.

Its a fairly simple blood test (for RMSF) and usually included in a tick panel, weird that wouldn't done. I bring it up only because I had it and I had vague nondescript symptoms. Unfortunately those symptoms are indicative of about a million things, but most often nothing at all and are lifestyle related. I have petechiae fairly often myself and have never pinpointed an exact cause. Most "pain" related drugs can cause it, including Tylenol. also allergens (like the pollen swirling) can cause petechia as well as fatigue and headaches. Those are unsatisfying answers, I know, when she feels awful. But my major worry would def be leukemia. but with clear blood results, its more likely its something a bit more chronic.
 

Toxick

Splat
:worthless

Necrotizing_Fasciitis_1_030302.jpg
 

Roman

Active Member
There are some arthritis' that can cause rash also. See what her Doctor has to say. The best of luck to your Sister, and hopefully a simple answer to her dilemma.
 
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