Ewing's Sarcoma Cancer

[latinamomma]

My husband and I found out on Aug. 14th, 2009 that our youngest daughter has Ewing's Sarcoma Cancer. It's a rare bone/ soft tissue cancer that only 200 children get every year. There is only a 65 % survival rate with form of cancer.
When my daughter came to us, she had some pain in her hip and we looked for any bruise and/ or bug bite. There was nothing. We then took her to her doctor, he thought it was nothing more than a pulled muscle. Within two weeks, she was in so much pain that she couldn't sleep, walk or sit for long and had stopped eating and didn't leave her room. We took her to the hospital where they did x-rays, sonograms and an MRI. That's when we went to Children's. Within 7 days of getting there, we find out that she has cancer. We were devestated.....just thrown for a loop. Our child has played soccer for 6 years, out going and good hearted, and ran the roads with her friends...and now, she has this challenge in front of her.
Since finding all this out, she has started chemo and will be doing radiation on the seventh cycle of chemo. Her friends have stopped talking to her and she is now home schooled. Even though this is going on, she is staying on the positive side...for we will not let her get down or depressed.
I guess I am letting all you parents out there know about this because if her doctor had done more test, we could have caught this earlier and not a month later. Please, if you think it could be more than what the doctor says, get a second opinion. I don't want any parents to go through what our family is going through.

 

[BS Gal]

My husband and I found out on Aug. 14th, 2009 that our youngest daughter has Ewing's Sarcoma Cancer. It's a rare bone/ soft tissue cancer that only 200 children get every year. There is only a 65 % survival rate with form of cancer.
When my daughter came to us, she had some pain in her hip and we looked for any bruise and/ or bug bite. There was nothing. We then took her to her doctor, he thought it was nothing more than a pulled muscle. Within two weeks, she was in so much pain that she couldn't sleep, walk or sit for long and had stopped eating and didn't leave her room. We took her to the hospital where they did x-rays, sonograms and an MRI. That's when we went to Children's. Within 7 days of getting there, we find out that she has cancer. We were devestated.....just thrown for a loop. Our child has played soccer for 6 years, out going and good hearted, and ran the roads with her friends...and now, she has this challenge in front of her.
Since finding all this out, she has started chemo and will be doing radiation on the seventh cycle of chemo. Her friends have stopped talking to her and she is now home schooled. Even though this is going on, she is staying on the positive side...for we will not let her get down or depressed.
I guess I am letting all you parents out there know about this because if her doctor had done more test, we could have caught this earlier and not a month later. Please, if you think it could be more than what the doctor says, get a second opinion. I don't want any parents to go through what our family is going through.

If she needs someone to talk to, I am also going thru chemo. Pleas PM me if you think I could talk with her. I'm pretty positive about mine, though don't have long to live. Where are you located?

 

[remaxrealtor]

If she needs someone to talk to, I am also going thru chemo. Pleas PM me if you think I could talk with her. I'm pretty positive about mine, though don't have long to live. Where are you located?

I've been watching your posts for a while now....You are an AMAZING woman. GOD BLESS you for your positive spirit. I personally want to say "thank you" for the way you give.

 

[Bann]

I've been watching your posts for a while now....You are an AMAZING woman. GOD BLESS you for your positive spirit. I personally want to say "thank you" for the way you give.

I feel the same way. There's nothing else I can add.

Except maybe a

 

[belvak]

I've been watching your posts for a while now....You are an AMAZING woman. GOD BLESS you for your positive spirit. I personally want to say "thank you" for the way you give.

I feel the same way. There's nothing else I can add.

Except maybe a

Me Three!! Big to latinamomma's Daughter and BS Gal!!

 

[SoccerMom2]

My husband and I found out on Aug. 14th, 2009 that our youngest daughter has Ewing's Sarcoma Cancer. It's a rare bone/ soft tissue cancer that only 200 children get every year. There is only a 65 % survival rate with form of cancer.
When my daughter came to us, she had some pain in her hip and we looked for any bruise and/ or bug bite. There was nothing. We then took her to her doctor, he thought it was nothing more than a pulled muscle. Within two weeks, she was in so much pain that she couldn't sleep, walk or sit for long and had stopped eating and didn't leave her room. We took her to the hospital where they did x-rays, sonograms and an MRI. That's when we went to Children's. Within 7 days of getting there, we find out that she has cancer. We were devestated.....just thrown for a loop. Our child has played soccer for 6 years, out going and good hearted, and ran the roads with her friends...and now, she has this challenge in front of her.
Since finding all this out, she has started chemo and will be doing radiation on the seventh cycle of chemo. Her friends have stopped talking to her and she is now home schooled. Even though this is going on, she is staying on the positive side...for we will not let her get down or depressed.
I guess I am letting all you parents out there know about this because if her doctor had done more test, we could have caught this earlier and not a month later. Please, if you think it could be more than what the doctor says, get a second opinion. I don't want any parents to go through what our family is going through.

Im sorry for the news. I know that might sound stupid. No one should have to go through this at all. I had Docs ignore me and my son and when we both finally got an answer there was some damage that cant be repaired. I wish your family the best.

 

[SoccerMom2]

If she needs someone to talk to, I am also going thru chemo. Pleas PM me if you think I could talk with her. I'm pretty positive about mine, though don't have long to live. Where are you located?

I too have read some of your post.

 

[vraiblonde]

How awful. Best of luck to your daughter, latinamomma - your family will be in my thoughts. Keep us posted how she's doing.

 

[SoMDGirl42]

My husband and I found out on Aug. 14th, 2009 that our youngest daughter has Ewing's Sarcoma Cancer. It's a rare bone/ soft tissue cancer that only 200 children get every year. There is only a 65 % survival rate with form of cancer.
When my daughter came to us, she had some pain in her hip and we looked for any bruise and/ or bug bite. There was nothing. We then took her to her doctor, he thought it was nothing more than a pulled muscle. Within two weeks, she was in so much pain that she couldn't sleep, walk or sit for long and had stopped eating and didn't leave her room. We took her to the hospital where they did x-rays, sonograms and an MRI. That's when we went to Children's. Within 7 days of getting there, we find out that she has cancer. We were devestated.....just thrown for a loop. Our child has played soccer for 6 years, out going and good hearted, and ran the roads with her friends...and now, she has this challenge in front of her.
Since finding all this out, she has started chemo and will be doing radiation on the seventh cycle of chemo. Her friends have stopped talking to her and she is now home schooled. Even though this is going on, she is staying on the positive side...for we will not let her get down or depressed.
I guess I am letting all you parents out there know about this because if her doctor had done more test, we could have caught this earlier and not a month later. Please, if you think it could be more than what the doctor says, get a second opinion. I don't want any parents to go through what our family is going through.

Prayers for you and your daughter. The story sounds nearly identical to a family member of mine. I pray that she falls into that 35% of survivors! It's great that she's staying positive. She sounds like a very strong girl, and I'm hoping for her that her strength will pull her through.

 

[lisa8439]

latinamomma - my heart just breaks for you and what your daughter is going through. I very much appreciate your openness on the subject - and I will send some prayers and positive thoughts to your daughter, I'm sure she will beat this! Please surround yourself with light and love.

And BSgal, just wow - you are an inspiration. Prayers and positive thoughts coming your way as well. Is there no chance that you can beat yours? I always pray for miracles - they do happen. Regardless, you sound like you are enjoying your life to the fullest - and it makes me step back and count my blessings and think about some things I need to chance in my attitude.

prayers to both ladies and mama fighting this...

 

[nachomama]

My husband and I found out on Aug. 14th, 2009 that our youngest daughter has Ewing's Sarcoma Cancer. It's a rare bone/ soft tissue cancer that only 200 children get every year. There is only a 65 % survival rate with form of cancer.
When my daughter came to us, she had some pain in her hip and we looked for any bruise and/ or bug bite. There was nothing. We then took her to her doctor, he thought it was nothing more than a pulled muscle. Within two weeks, she was in so much pain that she couldn't sleep, walk or sit for long and had stopped eating and didn't leave her room. We took her to the hospital where they did x-rays, sonograms and an MRI. That's when we went to Children's. Within 7 days of getting there, we find out that she has cancer. We were devestated.....just thrown for a loop. Our child has played soccer for 6 years, out going and good hearted, and ran the roads with her friends...and now, she has this challenge in front of her.
Since finding all this out, she has started chemo and will be doing radiation on the seventh cycle of chemo. Her friends have stopped talking to her and she is now home schooled. Even though this is going on, she is staying on the positive side...for we will not let her get down or depressed.
I guess I am letting all you parents out there know about this because if her doctor had done more test, we could have caught this earlier and not a month later. Please, if you think it could be more than what the doctor says, get a second opinion. I don't want any parents to go through what our family is going through.

If your daughter is who I think she is, she has 25 friends at Chopticon who talk and think about her all the time.

 

[BS Gal]

latinamomma: Is your daughter doing chemo at Children's or down here? I know that some hospitals will order the drugs to be administered here, although her care would still be thru Children's. Just a thought if the travel is a bit much. I'm not sure if that is an option that is available or that you would be comfortable with. The staff here is incredible. to her and your family. What a struggle this must be for all of you.

 

[Cowgirl]

I'm so sorry to hear about this, latinamomma. Keep us updated.

 

[whome20603]

That's very sad, I'm so sorry your daughter has to go through this LM. How old is she? You mentioned that her friends have stopped talking to her? That's terrible, I'm sure they just don't know what to say and/or how to deal with it but still...it's got to break your heart, and hers.

 

[latinamomma]

I want to thank everyone for the positive thoughts and prayers. She is a very loving 12 year old who is so full of life and wants to do so much. I think her friends just don't understand that she needs them right now. Part of her feels as if life is going on without her as she is fighting this. I want to thank the wonderful cheerleaders at Chopticon who let my baby cheer with them. She is looking forward to doing it again in a couple of weeks if she is up to it...if it's alright with you guys.
I will keep every posted on what is going on with her and how she is doing. Every day she amazes me because she is so strong and plans of beating this.
Thank you all again and I hope you all have a great day!!

 

[nachomama]

I want to thank everyone for the positive thoughts and prayers. She is a very loving 12 year old who is so full of life and wants to do so much. I think her friends just don't understand that she needs them right now. Part of her feels as if life is going on without her as she is fighting this. I want to thank the wonderful cheerleaders at Chopticon who let my baby cheer with them. She is looking forward to doing it again in a couple of weeks if she is up to it...if it's alright with you guys.
I will keep every posted on what is going on with her and how she is doing. Every day she amazes me because she is so strong and plans of beating this.
Thank you all again and I hope you all have a great day!!

She is more than welcome to come hang out with us anytime she wants. The girls are crazy about her. She has definitely taught my girls a very valuable life lesson as well. A few of my girls experienced this same situation 5 years ago when they lost a classmate at the age of 12 to leukemia, so they've been there.

 

[SoMDGirl42]

She is more than welcome to come hang out with us anytime she wants. The girls are crazy about her. She has definitely taught my girls a very valuable life lesson as well. A few of my girls experienced this same situation 5 years ago when they lost a classmate at the age of 12 to leukemia, so they've been there.

You and your girls rock for helping make this little girls life fun and exciting during such a hard time in her life. There are many lessons to learn from both sides! Keep cheering this girl on, we all would love to have our own cheerleaders routing for us when the chips are down.