He didn't give me any idea about that. I think it's just a see how it goes thing. It will be night feedings only. She will be hooked up to an IV type pump as she sleeps. It will come in handy for her medicine though for sure. No more mixing it in juice, she can just get it right in the tube.bresamil said:
Yes, she has a kidney disease called Renal Tubular Acidosis. She takes Bicarb 3x's a day to keep her co2 level right to make all her other levels fall into place. She also has had malabsorbtion problems where her food just goes right through her. This started when she was 6 months old and started losing weight. It is a real struggle for her to simply maintain her weight. The doctor is afraid that if we don't do something now she may have life long problems due to lack of nutrients reaching her brain. If her body isn't growing, neither is her brain. Right now she is fine, but we are at the cut off for no lasting effects.appyday said:
are you talking about a child? I have a niece who has one, and she's 2 1/2 yrs old will have one for the rest of her life, she is a special needs child and is the most sweetest thing in the world. she has what they call "smooth brain" you can do a search on it to see what it is exactally.camily said:
I can only imagine how heartbreaking this must be for you.
Yep. She is my little peanut.BOHDEN said:are you talking about a child? I have a niece who has one, and she's 2 1/2 yrs old will have one for the rest of her life, she is a special needs child and is the most sweetest thing in the world. she has what they call "smooth brain" you can do a search on it to see what it is exactally.
camily said:
baileydog said:
