Lyme Discussion
- Thread starter hotcoffee
- Start date
lisa8439
New Member
horrid.... and it goes back and forth. One day I'll feel ok, the next two days I can barely drag myself out of bed (I actually don't - I let the kids do it on those days)
I go back for my followup in a couple of weeks and will hopefully get the green light for IV antibiotics. My stomach turns even thinking about dealing with that again (this is my second time 'round the block with lyme and picc lines) but on the other hand, I know I have to go there in order to get well again - and this time I have a coinfection to go with it. Of course, last time I didn't have a husband and kiddos to worry about - and I am terrified of the herx days with the coinfection thrown into the mix.
Hotcoffee, where do you have your line at? Arm or chest? I am worried about the chest, simply because my youngest is a little hug monster - and I'm afraid she would do something to the line there. Then again, I've had the arm line and that was tough for many other reasons.
This is one of those things that I really just wish I could go to sleep and wake up, realizing that it was all a bad dream...
BTW - I was at CVS in California today and saw a car that had a green 'lyme' ribbon on the back. They also had a bumper sticker about lyme disease (but I can't remember what it said... ironic I suppose coming from a lymie)
I hope everyone is doing ok - this cold weather is rough on the joints
I go back for my followup in a couple of weeks and will hopefully get the green light for IV antibiotics. My stomach turns even thinking about dealing with that again (this is my second time 'round the block with lyme and picc lines) but on the other hand, I know I have to go there in order to get well again - and this time I have a coinfection to go with it. Of course, last time I didn't have a husband and kiddos to worry about - and I am terrified of the herx days with the coinfection thrown into the mix.
Hotcoffee, where do you have your line at? Arm or chest? I am worried about the chest, simply because my youngest is a little hug monster - and I'm afraid she would do something to the line there. Then again, I've had the arm line and that was tough for many other reasons.
This is one of those things that I really just wish I could go to sleep and wake up, realizing that it was all a bad dream...
BTW - I was at CVS in California today and saw a car that had a green 'lyme' ribbon on the back. They also had a bumper sticker about lyme disease (but I can't remember what it said... ironic I suppose coming from a lymie)
I hope everyone is doing ok - this cold weather is rough on the joints
Jameo
What?!
I've had my PICC for a little over 4 months now. Right now it's somewhat clogged and very sluggish 
Nurse is coming out this evening to try and flush it with cathflo (this will be the 3rd time it's been clogged). I'm probably looking at having to have it taken out and replace. But at least I've been feeling pretty damn good lately.
Nurse is coming out this evening to try and flush it with cathflo (this will be the 3rd time it's been clogged). I'm probably looking at having to have it taken out and replace. But at least I've been feeling pretty damn good lately.DecemberGal
Member
I've had my PICC for a little over 4 months now. Right now it's somewhat clogged and very sluggish
I'm sorry you are having so much trouble with the PICC. It's good to hear that you are feeling better.
My husband gets his PICC out tomorrow. I am so glad. He has been on it for 9 months. He is going to continue treating with naturals and suppliments.
I am doing good. Had a rough January. Over did at the holidays and my symptoms kicked in. Then caught a cold. It was a bad month.
I am finally feeling better. The symptoms are very mild and I only have a couple of days that I even notice anything durring the week.
Jameo
What?!
Looks like my PICC is probably coming out too
Nurse thinks I have a blood clot. Arm is swollen, minor discomfort and cold hand. Going to the hospital today for a chest x-ray and sono. :blah:
migtig
aka Mrs. Giant
Looks like my PICC is probably coming out too
Oh Jameo.
Let us know what happens.
Jameo
What?!
Oh Jameo.
Keep your fingers and toes crossed that if they do take my PICC out I won't have to have it replaced!
Hopefully I can finish my treatment with just oral antibiotics.
Chasey_Lane
Salt Life
Keep your fingers and toes crossed that if they do take my PICC out I won't have to have it replaced!
Are you awake during PICC placement? It is painful?
Jameo
What?!
You are awake. It's not painful at all. They give you a shot to numb the area that feels like a bee sting and that really is the worst part of it. Well, and a few days afterward you arm is kinda sore. It does sound A LOT worse than what it actually is.
ShyGirl
Active Member
I've had my PICC for a little over 4 months now. Right now it's somewhat clogged and very sluggish
Looks like my PICC is probably coming out too
Keep your fingers and toes crossed that if they do take my PICC out I won't have to have it replaced!
Wow, I hope everything works out for you
ShyGirl
Active Member
Off of IV antibiotics for a while now. After I stopped the IV antibiotics, I found that I needed to stay with the probiotics and detox (Flor-Essence mild detox from The Good Earth in Leonardtown works great!).
Just started noticing an arthritic-like feeling in my hands. There doesn't seem to be a sign of debilitating joint pain or neurological issues anymore.
Just started noticing an arthritic-like feeling in my hands. There doesn't seem to be a sign of debilitating joint pain or neurological issues anymore.
D
dems4me
Guest
to eveyrone!! Hope it goes well for you today Jameo!! 
Keep your fingers and toes crossed that if they do take my PICC out I won't have to have it replaced!
Good luck!
Jameo
What?!
Mojo
New Member
DecemberGal
Member
Looks like my PICC is probably coming out too
I'm sorry to hear that. Hope it goes well. Keeping you up in my prayers.
