Lyme test results-confused

[frozenrain]

Sorry not sure if we can post test result questions.However I am really confused.The urgent care doctor called to say I was psitive for Lyme.When I went to my regular kaiser doctor he wanted to test again yet those results came back negative.The nuurse told me to get urgent care results.So I got them. WEll The first test EIA was positive and the western Blot test came back positive with igM 41,39,and 21-25 but the igG came back negative.
Oh I saw the maryland Lyme disease report sheet my doctor filled in and it missed out some information.
I can see why so many people go undiagnosed when their tests come back negative(why is that so). I am on antibiotics-a measly 3 weeks and then I am supposed to be cured and there is no test to see if the antibiotics worked
Oh my blood test showed high WBC and low lymphocytes so obviously my body is fighting hard.

Anyhow I appreciate any feedback.I am sure even though you may not be a doctor you may know more than my doctor *deep sigh*


Thank you

 

[bresamil]

You may want to contact the creator of the southern maryland lyme facebook page. There is a community of lyme sufferers that may be able to help you interpret the test results.

 

[Gripper]

Sorry not sure if we can post test result questions.However I am really confused.The urgent care doctor called to say I was psitive for Lyme.When I went to my regular kaiser doctor he wanted to test again yet those results came back negative.The nuurse told me to get urgent care results.So I got them. WEll The first test EIA was positive and the western Blot test came back positive with igM 41,39,and 21-25 but the igG came back negative.
Oh I saw the maryland Lyme disease report sheet my doctor filled in and it missed out some information.
I can see why so many people go undiagnosed when their tests come back negative(why is that so). I am on antibiotics-a measly 3 weeks and then I am supposed to be cured and there is no test to see if the antibiotics worked
Oh my blood test showed high WBC and low lymphocytes so obviously my body is fighting hard.

Anyhow I appreciate any feedback.I am sure even though you may not be a doctor you may know more than my doctor *deep sigh*


Thank you

Im sorry frozenrain. I know how confusing all this is and on top of all that, your sick. My advice - don't waste time trying to interpret your results. The standard test is NOT accurate and I personally don't have a lot of faith in the costly specialized labs either. Lyme Disease should be a clinical diagnosis, not based on lab results anyhow. Most lyme literate drs have things they will check routinely to monitor progress (CD-57, platelets, etc) but it varies by Dr. I don't know of any though, that rely on the standard lyme test. When my oldest son was diagnosed, we included a lyme test on his initial blood work through the standard lab - "just for kicks" the DR said. It was positive. The following week it was negative. The following week it was positive. The child def had lyme. Within 2 weeks of starting the antibiotics, he was a whole new kid. But this reiterated to me how useless the tests really are.

On a side note - I don't know if your Dr told you, (Im guessing that he did not ) but you may get sick before you get better. Many times when a lyme sufferer starts antibiotics they get worse - its referred to as Herxing - basically the lyme flares up and your symptoms become worse. So if that happens, don't let it discourage you - it will get better. You should try and find a lyme literate DR and make an appointment ASAP as many of them are booking months in advance. I haven't forgotten to see if anyone has suggested a Dr in your area, I will check my list tonight or tomorrow. I know there is a good one in Germantown - is that anywhere near you? In the meantime, do not let your Dr off the hook. Ask for more antibiotics and then ask again. If he refuses, maybe check with a local infectious disease Dr.

Im sick to my stomach at what this disease is doing to so many people. :-(