Prayers Please

T

Tina2001aniT

New Member
So, I got a diagnosis for the kiddo's most recent set of health issues, and I do not like it. It is a rare disease that is not life threatening or anything, but has some very nasty effects. I am not sure after doing research that I believe the diagnosis, as alot of the symptoms do not match. But, three doctors have all said the same thing. I am currently looking for a doctor uptown to take her to that has maybe seen more of this disease.
The symptoms that she did have went away with medication but as soon as we stopped the medication the symptoms reappeared. This is not a medication that she can be on all the time as it is too strong of a medication for daily use.

Just a couple prayers for her to figure this out and get it under control would be great. Also, a couple prayers for my strength and sanity through it all would be great. :huggy: TIA
 
B

bresamil

wandering aimlessly
Oh Tina! I hope they're wrong! I'll keep her in my prayers and in the meantime, has she been seen at Children's yet?
 
virgovictoria

virgovictoria

Tight Pants and Lipstick
PREMO Member
:sendingpositivethoughsyourway: If and when you feel ready to share, I would be interested in knowing what your daughter has been diangosed with.
 
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FastCarsSpeed

FastCarsSpeed

Come Play at BigWoodys
virgovictoria said:
:sendingpositivethoughsyourway: If and when you feel ready to share, I would be interested in knowing what your Daughter has been diangosed with.
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Fixed :lmao:


I swear its not fun being a parent sometimes. I also feel like we have to be our own doctors anymore cause it seems doctors are quick to say something without getting all of the information.
 
forever jewel

forever jewel

Green Eyed Lady
Tina2001aniT said:
Just a couple prayers for her to figure this out and get it under control would be great. Also, a couple prayers for my strength and sanity through it all would be great. :huggy: TIA
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Of course, wouldn't have given it a second thought. Prayers to your daughter and you! Be strong :huggy:
 
LexiGirl75

LexiGirl75

100% Goapele Head!
Your daughter and you and your family are in my prayers and thoughts. :huggy:


Also, look into Natural Health & Healing for things you can do or use to help her on a daily basis so that the medicine won't overwhelm her. A good start would be the website below. :flowers:

Julissa Hernandez-Guzman
C and C II Natural Nutrition Center
(212) 923-6366 (office number)
Website: www.candcnutrition.com
 
Christy

Christy

b*tch rocket
Tina2001aniT said:
I am not sure after doing research that I believe the diagnosis, as alot of the symptoms do not match. TIA
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If you do not agree with the diagnosis and it just doesn't feel right, definitely continue your own search as to what it may be. We dealt with I don't know how many doctor's and their bogus diagnosis and recommendations for treatment when Zoe had lyme disease. We were very pro-active and eventually found the best doctor in the world (Dr. George Leon). He was very aggressive with her treatment (I believe it was 6 or more months on high doses of antibiotics). Most doctor's wouldn't have even considered that. But it worked and she has been perfectly fine for many years now. :yay: Anyway, I'm rambling, but just follow your instincts and keep searching, until you find a doctor that will take that doubt away. :yay: Good luck. :huggy:
 
C

checkingthenews

C'mon...Smile!
Tina2001aniT said:
So, I got a diagnosis for the kiddo's most recent set of health issues, and I do not like it. It is a rare disease that is not life threatening or anything, but has some very nasty effects. I am not sure after doing research that I believe the diagnosis, as alot of the symptoms do not match. But, three doctors have all said the same thing. I am currently looking for a doctor uptown to take her to that has maybe seen more of this disease.
The symptoms that she did have went away with medication but as soon as we stopped the medication the symptoms reappeared. This is not a medication that she can be on all the time as it is too strong of a medication for daily use.

Just a couple prayers for her to figure this out and get it under control would be great. Also, a couple prayers for my strength and sanity through it all would be great. :huggy: TIA
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Many thoughts and prayers are being sent your way. Insist on information from the doctors, it is your right to know EVERYTHING. Best wishes to your family and stay strong. :flowers:
 
UpChuckMan

UpChuckMan

Upper Charles County :-)
Tina2001aniT said:
Just a couple prayers for her to figure this out and get it under control would be great. Also, a couple prayers for my strength and sanity through it all would be great. :huggy: TIA
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My thoughts and prayers are with you and the "Kiddo" :huggy:
 
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