progressive sensorineural hearing loss
- Thread starter pixiegirl
- Start date
I can't even pronounce it. Does this mean the little guy will need hearing aids?
kwillia
n/a
Wiki explains it pretty well... Sensorineural hearing loss - Wikipedia, the free encyclopedia
That sucks. Make sure you get him in speech therapy.
camily
Peace
This is the exact thing I am told to keep an eye on with Celie. Often kids with RTA develope it. I do know that the Charles County infants and toddler program offers sign language free to the entire family and that it is best to start now so they can learn while they still have hearing.Distal renal tubular acidosis associated with isolated large vestibular aqueduct and sensorineural hearing loss | Article from The Annals of Otology, Rhinology & Laryngology | HighBeam Research
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ohstate
Member
I have a friend who has a little boy that was born deaf. His blog has a lot of links to information for parents of kids with hearing issues that might be of assistance to you.
Turn On My Ears!
Turn On My Ears!
pixiegirl
Cleopatra Jones
Wiki explains it pretty well... Sensorineural hearing loss - Wikipedia, the free encyclopedia
That sucks. Make sure you get him in speech therapy.
He doesn't have ANY speech problems. The audiologist said it's probably only been a year or so since it began and that it will possibly get worse which is the sad part because he's at mild to moderate level now. Due to his age he is a great cantidate for hearing aides. We have to go to a ENT and probably have some genetic testing done.
camily
Peace
Is he small? How has his growth been?
kwillia
n/a
That is most certainly a bright spot in this, Pix... his speech development would have certainly been affected had it hit him earlier. I guess it's too soon to tell how far the hearing loss will progress, huh?
pixiegirl
Cleopatra Jones
He's tall and skinny as hell. Growth and development have been very normal.
pixiegirl
Cleopatra Jones
That is most certainly a bright spot in this, Pix... his speech development would have certainly been affected had it hit him earlier. I guess it's too soon to tell how far the hearing loss will progress, huh?
I was fairly floored by the initial diagnosis. He failed his school hearing test last year and I took him to the peditrician who equated it to age and allergies. When his head gets stopped up it's like him putting his fingers in his ears. He did very well in school so I figured that was a good diagnosis. This year his teacher was concerned with his hearing and asked that he be tested again and after another failure I took him to an actual audiologist. I'm shocked that it's so bad because he's one of the most advanced in his class. I sent a thank you note to his teacher. I'm very glad we caught it now but am sad for him because we don't know if it will get worse and there is a potential for total hearing loss.
camily
Peace
Good to hear! If you think about it get his co2 checked. That's just the RTA mom in me coming out though. I know you are skinny so that's not a huge flag but something to look into.
kwillia
n/a
Is it an equal loss in both ears?
pixiegirl
Cleopatra Jones
Pretty much. It was within 5 decibles.
StrawberryGal
Sweet and Innocent
Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.
I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.
However, if you want, I can teach you and your boy sign language. Just let me know what you want to do.
I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.
However, if you want, I can teach you and your boy sign language. Just let me know what you want to do.
Hoover
New Member
Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.
I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.
However, if you want, I can teach you and your boy sign language. Just let me know what you want to do.
Teach me Teach me!!! I have always wanted to learn and now more so I can talk to you and not write - my hand hurts!!!!!
Beelzebaby666
Has confinement issues..
My son's father suffered progressive hearing loss from a fever and infection when he was 2 years old. It took 30 years to lose all of his hearing and he has to wear these super sonic hearing aids now. He has not speech problems and can play guitar as good as anyone with good ears.
We keep close tabs on my sons hearing because of this and his susceptibility to ear infections. My son has only the slightest hearing loss and the doctors haven't indicated that we worry about it since he's outgrown the ear infections.
Good luck hon
We keep close tabs on my sons hearing because of this and his susceptibility to ear infections. My son has only the slightest hearing loss and the doctors haven't indicated that we worry about it since he's outgrown the ear infections.
Good luck hon
ocean733
New Member
Pixie, I'm sorry to hear about it. I have nerve damage in the center of my brain that caused my hearing loss. I was born this way.
I know I speak well for a deaf person who never heard any sounds and wore hearing aids to hear sounds. He'll be fine in speech department. I think he will need to learn sign language in case he lose his hearing that bad and would need an interpreter to help him to keep doing well in school. However, I hope he can benefits from hearing aids or cochlear implant.
However, if you want, I can teach you and your boy sign language. Just let me know what you want to do.
You could never hear? Wow. You probably told me, but you pronounce so well that I guess I forgot.
StrawberryGal
Sweet and Innocent
I would love to teach you.
Yeah, my hand hurt from writing too.
I would love to talk in sign language with you that no one would know what we are talking about.
StrawberryGal
Sweet and Innocent
You could never hear? Wow. You probably told me, but you pronounce so well that I guess I forgot.
I meant that I never hear because I was born deaf. I have no idea what it was like to be able to "hear" like hearing people do. People keep asking me "what it is like to be deaf?" and "What sound do you miss the most and why?" I have no idea how to answer these type of questions since I was never able to "hear".
I can hear with hearing aids, but I'm sure the sounds aren't normal like the way hearing people hears it.
Yeah, I know I pronounce so well, but I got you fooled.
There are some words I could not prounounced at all. People would hear me misprouncing the words and get a kick out of it by laughing so hard. For example, back in 1999, I asked a co-worker for a disk and she thought I was asking for "Dick". She asked me why I wanted a "penis" for. 
I couldn't do "s" very well.