KDENISE977
New Member
Anyone have a child who's had them ?
Complex Partial Seizure
- Thread starter KDENISE977
- Start date
animalluvr4life
animal luvr
did your son have one is that why you want to know if anyone else has a child who has had them?
KDENISE977
New Member
My son, yesterday.
SoMDGirl42
Well-Known Member
mAlice
professional daydreamer
I assume he's had seizures before. How old is he?
KDENISE977
New Member
What I was told by his pediatrician was that documentation is the BIGGEST thing and we need to get it on video to show a neurologist. I have a follow up appt the first week of January and until then I'm supposed to see if I can get it on video to show the neurologist.
KDENISE977
New Member
No, this is the first time. It's not his whole body, only his arms and hands.
mAlice
professional daydreamer
I don't know why your pediatrician would say that, when the neurologist is going to test him.
mAlice
professional daydreamer
Seizures come in all shapes and sizes. How old is your son?
KDENISE977
New Member
He's 18 months. The pediatrician said the neurologist will want to see it. They want to see if when you actually hold his hands or arms it will stop. See if he's fully coherent when it's going on. Yesterday it would last for 15-20 minute episodes. He was very coherent or at least seemed to be.
DaisyDuke
Member
My younger sibling had epilepsy when she was younger; which she eventually outgrew. Only one side of her face would twitch and she wouldn't be coherent during the episode. I would think the neurologist would do an EEG or sleep study, some kind of test on your son. I know her neurologist never actually witnessed any of her seizures.
Best wishes to you and your son and hope they figure it out soon. I remember being a kid, watching and feeling hopeless. I can't imagine watching it happen to your child.
KDENISE977
New Member
My younger sibling had epilepsy when she was younger; which she eventually outgrew. Only one side of her face would twitch and she wouldn't be coherent during the episode. I would think the neurologist would do an EEG or sleep study, some kind of test on your son. I know her neurologist never actually witnessed any of her seizures.
Best wishes to you and your son and hope they figure it out soon. I remember being a kid, watching and feeling hopeless. I can't imagine watching it happen to your child.
Thanks, it was the weirdest thing to watch. His arms and legs were basically quivering or tremoring and he seemed fine. Trying to eat his breakfast yesterday. I hope he does outgrow it. THANK YOU FOR SOME GOOD HOPE !!
mAlice
professional daydreamer
The neurologist might like to see it, but that doesn't mean he's going to have one for you. I know it's scary. It'll be okay. Make sure to write down any questions you have between now and the appointment, so you won't forget any. If the neurologist rushes you, find another. If your son has a grand mal, call 911. Don't freak out, just call 911.
KDENISE977
New Member
Yes, I'm trying NOT to freak out and do research. I know pediatricians and all doctors see so many patients/children that they seem to be more relaxed about it. I myself, want to know the if/ands/why's etc and how to fix whatever it is so I never have to witness it again !!!
mAlice
professional daydreamer
Don't hold your breath. Resign yourself to dealing with this through most of your sons childhood. If that's not the case, then great, but don't count on it.
You may never be able to handle it as well as doc's. My daughter had her first seizure when she was 13, and will most likely have them for the rest of her life. You're lucky in that, typically, children who begin having seizures very young, grow out of them.
You have a lot to learn. Start here Epilepsy Foundation
Roman
Active Member
Also, it is impossible for them to swallow their tongue. Amazing how many people still believe that can happen. If he does have a seizure that you think warrants 911, just make sure you lay him on his side if possible, to make sure no fluids get inhaled. Do not try to stop the seizere, but make sure there is nothing near by that he can hit his head on, or that can fall on him. My Son had seizures at a young age, and hasn't been on meds in 33 years. Hang in there, he'll be fine.
SoMDGirl42
Well-Known Member
We used to use bite sticks, more to protect them from biting their tongues and obstructing their airway with blood. Don't know if that's changed or not
Dakota
~~~~~~~
I had some sort of seizures starting in my pre-teens and ended when I turned 19. For that I'm grateful because my doctor's at the time were concerned it would be a life long event.
I am no expert at all, mAlice has more understanding of this subject than anyone on the forums and has a lot of valuable advice. Hopefully this *IS* something he grows out of.
I am no expert at all, mAlice has more understanding of this subject than anyone on the forums and has a lot of valuable advice. Hopefully this *IS* something he grows out of.
KDENISE977
New Member
Thanks everyone. We are def. still in the learning stage and the dr. said we're lucky in that he's very coherent when they happen, or at least he seems to be.