Every parent's nightmare

[CalvertNewbie]

I also have read every post, btw, they usually post new every other day, and most of them have brought me to tears, some sad, some happy. I have said numerous prayers for this family. They do have a long journey ahead but with Gods help, Avery will come home soon. It amazes me how much life this baby has been through and isnt even suppose to be born yet. Keep up the good work Avery.

I know what you mean. I've been following Avery's journey, crying the entire way. Thank God she seems to be making some real progress. She's quite the little fighter!

Every time I read their posts, I can't hold back the tears. I can't imagine how horrible yesterday must have been. Nobody should ever have to bury their children. My grandmother said that at my father's funeral and I've never forgotten her saying it. It's so true, I just can't imagine anything worse.

 

[RareBreed]

I can't imagine first losing your wife and now losing your little girl...

I wrote about Mike early on and explained how he had lost his wife unexpectedly while she was 24 weeks pregnant and that was the reason that his daughter was born premature.

Mike explained to me two days ago that his daughter, Layla, is unfortunately not going to make it. While she did not suffer the intra-ventricular hemorrhage that Avery did, she did suffer damage to her brain stem-the area of the brain that produces the most basic of reflexes. She will most likely never be able to carry out the basic steps of eating and would likely never have any quality of life. With tears welling in his eyes Mike explained to me the options that he had before him and none of them are good.

Please, everyone that reads this, say a prayer for Mike and Layla.

 

[ICit]

I can't imagine first losing your wife and now losing your little girl...

I wrote about Mike early on and explained how he had lost his wife unexpectedly while she was 24 weeks pregnant and that was the reason that his daughter was born premature.

Mike explained to me two days ago that his daughter, Layla, is unfortunately not going to make it. While she did not suffer the intra-ventricular hemorrhage that Avery did, she did suffer damage to her brain stem-the area of the brain that produces the most basic of reflexes. She will most likely never be able to carry out the basic steps of eating and would likely never have any quality of life. With tears welling in his eyes Mike explained to me the options that he had before him and none of them are good.

Please, everyone that reads this, say a prayer for Mike and Layla.

OMG... to them.. and many prayers

 

[lovinmaryland]

I can't imagine first losing your wife and now losing your little girl...

I wrote about Mike early on and explained how he had lost his wife unexpectedly while she was 24 weeks pregnant and that was the reason that his daughter was born premature.

Mike explained to me two days ago that his daughter, Layla, is unfortunately not going to make it. While she did not suffer the intra-ventricular hemorrhage that Avery did, she did suffer damage to her brain stem-the area of the brain that produces the most basic of reflexes. She will most likely never be able to carry out the basic steps of eating and would likely never have any quality of life. With tears welling in his eyes Mike explained to me the options that he had before him and none of them are good.

Please, everyone that reads this, say a prayer for Mike and Layla.

So the wife died now too???

 

[RareBreed]

So the wife died now too???

No, not Avery's mom. The wife of Mike and mom to Layla (another NICU family that Quin and Robin have befriended). His wife became ill and died and they had to take the baby early. Now it seems that the baby will die soon too.

 

[CalvertNewbie]

I just read the latest journal entry (from yesterday) and Avery has been moved to a crib! The pics of her are so beautiful and her proud Daddy looks completely ecstatic about her being in her new bed (so much easier to give her hugs and kisses now). Avery is really coming along, now 3 months old.

Hold on, need to grab the tissues.....again!

 

[RareBreed]

Email from Quin...

Over the past three months Robin and I have obviously been dealing with a terrible set of circumstances. Despite the pain and loss that we have dealt with we have felt the constant support of my A.P.D. family and we're extremely grateful.



Avery is still in the NICU but continues to fight and make progress. We've been told not to expect to have her home before the beginning of the year, but even that seems close when one considers how far she has come.



I sincerely wish that there was more that I could do to thank you all, there simply aren't words that would accurately express how grateful we are.



Thanks again.

 

[RareBreed]

And speaking of leaving the hospital-I can’t believe that I am about to do this, but here goes-the doctor told Robin today that our departure will likely be even sooner than we had thought; as soon as early next week. I am still cautiously optimistic about such a prediction, but oh what a Christmas it will be if indeed she is released that soon.

 

[Pushrod]

And speaking of leaving the hospital-I can’t believe that I am about to do this, but here goes-the doctor told Robin today that our departure will likely be even sooner than we had thought; as soon as early next week. I am still cautiously optimistic about such a prediction, but oh what a Christmas it will be if indeed she is released that soon.

She is truelly a miracle child. My prayers continue to go out for Avery and her family.

 

[baileydog]

Its official, Avery has gone home for Christmas. What a wonderful gift they got. I bet they couldnt be any happier. As I am equally happy for them. Finally! YEA!!

 

[CalvertNewbie]

Its official, Avery has gone home for Christmas. What a wonderful gift they got. I bet they couldnt be any happier. As I am equally happy for them. Finally! YEA!!

Just caught up on Avery's journey. Amazing little girl she is! So glad they got to spend Christmas at home. Oh and I absolutely love the nursery they have for her....I'm sure it's a nice peaceful place for her after so many months of chaos in the nicu.

 

[ICit]

oh the tears of joy I have..... god bless!

Im soo happy for them.