Need your input

PsyOps

Pixelated
I don’t like posting stuff like this on a forum since folks tend to rely on answers to diagnose their problem. I’m not trying to do that. I am just looking for folks that have had similar circumstances that could provide some insight so I can put these in front of my mom’s doctor.

Background: My dad passed away about three months ago. He and my mom were married for 53 years and were soul mates. My dad had bypass surgery back in Nov ’04 and struggled with his health ever since until he passed. Helpless to do anything about it, this was taking an obvious toll on my mom’s health. Sometime during the last 5 years of my dad’s life my mom (who is 74) started showing signs of short-term memory loss. She was a very organized person, always cooked for every party and event they had at their house (which was many). Then she became less organized to the point others had to starting doing all the cooking and such. Then we noticed her walk was more of a shuffle. She blamed on a gimpy hip.

After my dad’s death my mom refused to leave her house and lived there for about a month. I think this was a big turning point as her walking became more struggled and her short term memory was getting significantly worse. She got to the point where she couldn’t even leave the house, and was falling often. She finally realized she couldn’t stay in the house. She came to live with me and my family until we could get her into assisted living.

While she stayed with me I could observe her.

- When walking she would reach for things (like walls, doorknobs, tabletops, etc…) to help her keep her balance, but would reach out before she was actually close enough to reach it. She had problems figuring out how to negotiate around certain objects: like getting around the end table to get to the couch and getting herself positioned properly in front of the couch before sitting down (she would often sit on the arm of the couch and slide into position).

- Having conversations with her were, for the most part, normal except she would repeat things; but seem to have no problem recalling older information.

- Performing mental skills: She seems to have lost the concept of doing crossword puzzles She loved reading but shows no interest in that anymore. She loved to cook but I believe she does not know how to anymore. Even using the TV remote control is a challenge for her.

We (my brothers and I) took my mom to several doctors and she’s had several cognitive tests done, CT Scans and an MRI on her head, and lots of blood work. All tests have ruled out dementia or Alzheimer’s at this point.

So her symptoms are:

- Short term memory loss that has been noticeable for about 3 years
- Sudden loss of motor skills like walking and negotiating around objects
- Sudden loss of ability to handle mental challenges like crosswords, reading and cooking
- Chronic diarrhea

Although dementia or Alzheimer’s has been ruled out, it’s still possible she could have this and future tests will reveal this; but her symptoms are quickly getting worse that is not indicative of dementia or Alzheimer’s. She is now at a point where she requires 24 hour surveillance for fear that she might fall.

This seems to have baffled everyone at this point, so I am posting on here for anyone that has had similar circumstances that might shed some helpful light on what we can have her doctor look for.

Thanks for reading my long post.
 

RoseRed

American Beauty
PREMO Member
Although dementia or Alzheimer’s has been ruled out, it’s still possible she could have this and future tests will reveal this; but her symptoms are quickly getting worse that is not indicative of dementia or Alzheimer’s. She is now at a point where she requires 24 hour surveillance for fear that she might fall.

Have her checked for Lewy Body Dementia. Welcome to the Lewy Body Dementia Association

Johns Hopkins has a good program dealing with it.
 

libertytyranny

Dream Stealer
Lots of things can cause demtia-like symptoms in older folks. Blood sugar, drug interactions/drug reactions (anything new?), vision and/or hearing loss ( a lot of times older folks will not report their problems..not wanting to be a "burden" or thinking they are normal parts of ageing), or depression are the things I immediately think of.

Though, the symptoms do seem to be awfully indicative of dementia..and since there is no fool proof "test" for it..it may be difficult to rule out. Don't underestimate the power of depression, either. I have seen on more than one occasion that when one partner dies (esp much older couples) the other one follews shortly or their health takes a major decline...and no matter what docs say..I can't help but think it is from a broken heart.
 

twinoaks207

Having Fun!
Might be related to complications from diabetes -- this was particularly interesting (I read the first one only) http://spa.wvu.edu/r/download/52493

Could be side effects from medication she's on (remember reading about something like this recently).

Could be Dementia with Lewy Bodies (WebMD is a wonderful website).

Go to WebMD and use the symptom checker feature -- you know what's going on better than any of us would... Symptom Checker

Good luck & sending out prayers for you both.
 

PsyOps

Pixelated
Lots of things can cause demtia-like symptoms in older folks. Blood sugar, drug interactions/drug reactions (anything new?), vision and/or hearing loss ( a lot of times older folks will not report their problems..not wanting to be a "burden" or thinking they are normal parts of ageing), or depression are the things I immediately think of.

Though, the symptoms do seem to be awfully indicative of dementia..and since there is no fool proof "test" for it..it may be difficult to rule out. Don't underestimate the power of depression, either. I have seen on more than one occasion that when one partner dies (esp much older couples) the other one follews shortly or their health takes a major decline...and no matter what docs say..I can't help but think it is from a broken heart.

Short of any real answers this has been my knee-jerk answer as well. The days immediately after my dad's death I stayed with my mom - around the clock - because we knew she shouldn't be alone. She showed some very severe signs of depression. Her dr finally prescribed her Zoloft. This seemed to have gotten her out of her cycle of obsessing over my dad's death and seemed more lucid and accepting of my dad's death. During that one month alone in the house she drank a lot and didn't eat well at all; which she could have suffered from mild malnutrician. It was what she demanded though. She was not going to leave that house; the house she spent 48 years of her life with her soul mate. So a lot of damage was done in that month I think. But what?
 

Chasey_Lane

Salt Life
I hate to be a downer, but has she been checked for cancer? Before my grandmother was diagnosed with cancer, she was often "confused" for a few months. She would forget things, and often repeat things. She'd stare at walls and pictures. Her symptoms very much resembled dementia before her diagnosis.
 

PsyOps

Pixelated
Might be related to complications from diabetes -- this was particularly interesting (I read the first one only) http://spa.wvu.edu/r/download/52493

Could be side effects from medication she's on (remember reading about something like this recently).

Could be Dementia with Lewy Bodies (WebMD is a wonderful website).

Go to WebMD and use the symptom checker feature -- you know what's going on better than any of us would... Symptom Checker

Good luck & sending out prayers for you both.

She does not have diabetes.

Thanks for the prayers.
 

PsyOps

Pixelated
I hate to be a downer, but has she been checked for cancer? Before my grandmother was diagnosed with cancer, she was often "confused" for a few months. She would forget things, and often repeat things. She'd stare at walls and pictures. Her symptoms very much resembled dementia before her diagnosis.

No downer at all. At this point I am counting anything as a possibility. She has had several xrays, CT Scans and MRIs done and nothing indicates tumors or cancer. Now the chronic diarrhea has me concerned for colon cancer and we have an appointment for that. But nothing I've read showed a connection between denentia symptoms and colon cancer.

What kind of cancer did your grandmother have?
 

oldman

Lobster Land
Short of any real answers this has been my knee-jerk answer as well. The days immediately after my dad's death I stayed with my mom - around the clock - because we knew she shouldn't be alone. She showed some very severe signs of depression. Her dr finally prescribed her Zoloft. This seemed to have gotten her out of her cycle of obsessing over my dad's death and seemed more lucid and accepting of my dad's death. During that one month alone in the house she drank a lot and didn't eat well at all; which she could have suffered from mild malnutrician. It was what she demanded though. She was not going to leave that house; the house she spent 48 years of her life with her soul mate. So a lot of damage was done in that month I think. But what?

This hits home very hard for me, but six years ago (without a reason) I basically quit eating and was drinking to fill my stomach. I would go a week at a time without eating. A body HAS to eat or it falls completely apart. Bones fell apart, joints started to fall apart, falling for no reason, weight loss, diarrhea and loads of other problems. Spent 3 weeks in the hospital and another 4 months rehabbing at my brothers before I felt safe in living by myself again. Still have some minor problems from it to this day although one wouldn't know it by looking at me.
 

struggler44

A Salute to all on Watch
Someone helping her with any meds she might be taking? Just a thought as my grandmother was all jacked up until we figured out she was taking meds on top of meds at times..... wish your family the best.
 

RPMDAD

Well-Known Member
Short of any real answers this has been my knee-jerk answer as well. The days immediately after my dad's death I stayed with my mom - around the clock - because we knew she shouldn't be alone. She showed some very severe signs of depression. Her dr finally prescribed her Zoloft. This seemed to have gotten her out of her cycle of obsessing over my dad's death and seemed more lucid and accepting of my dad's death. During that one month alone in the house she drank a lot and didn't eat well at all; which she could have suffered from mild malnutrician. It was what she demanded though. She was not going to leave that house; the house she spent 48 years of her life with her soul mate. So a lot of damage was done in that month I think. But what?

PsyOps,

First of all i am very sorry for the situation you and your Mom are currently in. Very similar situation for me when my father passed. I am curious in all of the tests they ran did they ever mention thiamin or vitamin B1 deficiency.
Not saying this is related at all but may be something to look in to. Sorry again.

Wernicke-Korsakoff syndrome
 

PsyOps

Pixelated
This hits home very hard for me, but six years ago (without a reason) I basically quit eating and was drinking to fill my stomach. I would go a week at a time without eating. A body HAS to eat or it falls completely apart. Bones fell apart, joints started to fall apart, falling for no reason, weight loss, diarrhea and loads of other problems. Spent 3 weeks in the hospital and another 4 months rehabbing at my brothers before I felt safe in living by myself again. Still have some minor problems from it to this day although one wouldn't know it by looking at me.

She's not having problems with eating; although we worry she isn't drinking enough water. She did have a mild UTI a little while ago. She eats well. She seems to get hit hard with the diarrhea right after a meal. I should also point out that the diarrhea has been going on for several years. But now, not a single bowel movement is without diarrhea.

If you don't mind sharing, any idea why this happened to you?
 

PsyOps

Pixelated
Someone helping her with any meds she might be taking? Just a thought as my grandmother was all jacked up until we figured out she was taking meds on top of meds at times..... wish your family the best.

She's in an assisted living community and they administer her meds every day so she doesn't have to remember.
 

snuzzy

New Member
My mother had similar symptoms and they were finally traced to a medication she had been taking for years for acid reflux, not positive of the name but "Riglan" seems close. The falling was our big concern for her. Her family Dr., after several specialists, etc., admitted that he should have "caught it" because they were familiar side effects for this medication. Best wishes!
 

migtig

aka Mrs. Giant
I actually think they could be separate issues. I volunteer at a senior center and see the vast majority have the need for a walker/stroller. The reasons are varied, a build up of fluid in the legs, diabetes, osteoarthritis, bursitis and more.

The second part sounds like it could very easily be an anxiety disorder and depression, just because of her general situation. I even think some of the forgetfulness, repeating etc, is normal and age related. But it also could point to her thyroid being out of whack or low blood sugar or as others have mentioned her current medication. I actually don't see alzheimer's in the symptoms, though I can understand your concern. Prior to my grandmother being diagnosed with alzheimer's, she set her kitchen on fire, because she didn't know she couldn't cook. On the other end of the spectrum, my semi-normal grandmother totally remodeled her kitchen, updated her appliances and so on after my grandfather died and then she refused to cook another meal.

I think you are doing a wonderful job of being vigilant about her care. Don't give up. You'll get the answers. :huggy:
 

PsyOps

Pixelated
PsyOps,

First of all i am very sorry for the situation you and your Mom are currently in. Very similar situation for me when my father passed. I am curious in all of the tests they ran did they ever mention thiamin or vitamin B1 deficiency.
Not saying this is related at all but may be something to look in to. Sorry again.

Wernicke-Korsakoff syndrome

This is very good. I'm certain, with all the blood tests she has had, they would have checked her B1, but it's definitely a question I will as her dr.

Thanks :buddies:
 

RoseRed

American Beauty
PREMO Member
AS I mentioned, they have currently dismissed dementia; which I'm sure tests were done for LBD.

Thanks.

With no disrespect intended, I understand what you are saying. My step father wasn't diagnosed until a third opinion. It never hurts to explore another opinion. LBD wasn't well known at the time of his diagnosis.
 

dawndb

New Member
PsyOps,

First of all i am very sorry for the situation you and your Mom are currently in. Very similar situation for me when my father passed. I am curious in all of the tests they ran did they ever mention thiamin or vitamin B1 deficiency.
Not saying this is related at all but may be something to look in to. Sorry again.

Wernicke-Korsakoff syndrome

B12 deficiency will cause these symptoms also.
 

PsyOps

Pixelated
With no disrespect intended, I understand what you are saying. My step father wasn't diagnosed until a third opinion. It never hurts to explore another opinion. LBD wasn't well known at the time of his diagnosis.

None taken. So far she has been tested in two different hospitals. I am adding this to my list of things to ask the dr. Thanks.
 
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