Parents Ask Doctors to Keep Daughter Small

vraiblonde

vraiblonde

Board Mommy
PREMO Member
Patron
nitwhit3286 said:
Absolutely postively disgusting!! i can't believe that keeping a child small is for the benefit of the child...it benefits the parents.... the mother probably did something during the pregnancy to make the child turn out the way she did. Shame on the mother..shame on the parents period. It makes me sad to see that poor young girl..not able to function properly..not able to grow properly..all because of the parents. And they say to others it is just speculation because others don't know what is really going on..yeah because I bet they have people chomping at the bit to tell these supposed caregivers off. How unethical to keep the child small for their benefit!!! Makes me angry. Makes me completely sick to my stomach..that a child has suffered tremendously for the past nine years..and something that will torment her for the rest of her life.
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So judgemental :nono:

And you want Terry to confide in you.....
 
jazz lady

jazz lady

~*~ Rara Avis ~*~
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nitwhit3286 said:
Absolutely postively disgusting!! i can't believe that keeping a child small is for the benefit of the child...it benefits the parents....not even the mother probably did something during the pregnancy to make the child turn out the way she did. Shame on the mother..shame on the parents period. It makes me sad to see that poor young girl..not able to function properly..not able to grow properly..all because of the parents. And they say to others it is just speculation because others don't know what is really going on..yeah because I bet they have people chomping at the bit to tell these supposed caregivers off. How unethical to keep the child small for their benefit!!! Makes me angry. Makes me completely sick to my stomach..that a child has suffered tremendously for the past nine years..and something that will torment her for the rest of her life.
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You obviously didn't get the fact that Ashley has the development of a 3-month old and has absolutely NO hope of ever developing further. She is tube fed and all of her needs, from feeding to diaper changing, have to be done for her 24/7/365 and have been done for her since she was born. The vast majority of parents would say instutionalize her and let someone else care for their child. It's not an easy job by far and who knows for how long they will have to do it. She may well outlive them and they have taken the option to devote their life to her in the best manner they see fit. I don't know of too many people who could or would do that.
 
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nitwhit3286

Guest
jazz lady said:
You obviously didn't get the fact that Ashley has the development of a 3-month old and has absolutely NO hope of ever developing further. She is tube fed and all of her needs, from feeding to diaper changing, have to be done for her 24/7/365 and have been done for her since she was born. The vast majority of parents would say instutionalize her and let someone else care for their child. It's not an easy job by far and who knows for how long they will have to do it. She may well outlive them and they have taken the option to devote their life to her in the best manner they see fit. I don't know of too many people who could or would do that.
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she is their child!! I know I would..no matter how rough of the situation..babies/children don't ask to be born..we bring them into this world..so we should be the ones taking care of them regardless of circumstances.
 
ashliekay711

ashliekay711

New Member
Tinkerbell said:
Yeah, I know House had an episode about it as well, but I saw another story on discovery health about it. It was a show that went into whether or not people should be allowed to change a baby's gene in utero to ensure they are a certain way (height, hair color, etc). They said they are trying to narrow down the gene for midgits because many midgit parents don't want normal size children. They want children like them. That's when they brought up this couple that was affecting their daughters growth. She was still WAY taller than them.
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yeah i saw an article, i think it was in the tv guide about that...
 
BadGirl

BadGirl

I am so very blessed
nitwhit3286 said:
Absolutely postively disgusting!! i can't believe that keeping a child small is for the benefit of the child...it benefits the parents.... the mother probably did something during the pregnancy to make the child turn out the way she did. Shame on the mother..shame on the parents period. It makes me sad to see that poor young girl..not able to function properly..not able to grow properly..all because of the parents. And they say to others it is just speculation because others don't know what is really going on..yeah because I bet they have people chomping at the bit to tell these supposed caregivers off. How unethical to keep the child small for their benefit!!! Makes me angry. Makes me completely sick to my stomach..that a child has suffered tremendously for the past nine years..and something that will torment her for the rest of her life.
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If Ashley were a normal-sized adult weighing in at 159 pounds would YOU be willing to carry her to her bed, lift her into the shower, manipulate her so that you could change her diapers, and carry her wherever she needed to go? Probably not. Remember, untill you are in their situation, you have no idea of the turmoil it must have taken them to come to this drastic decision.

Like I mentioned in my post above, I know that if my mother weighed much more than what she weighs now (110 lbs), I would be unable to offer care to her. She'd end up on a nursing home where she's get -perhaps- less quality care than she can get at home. And the cost of nursing home care to our family would be staggering to say the least. It is in our best interest -and mom's- that she be cared for at home with us.

Seeing that her parents are the caregivers, they did what they had to do to ensure that they could physically take care of her to the best of their abilities. They recognized that her projected adult weight would be too much for them to manage, so that stunted her growth. I don't see anything at all wrong with that. Now...if Ashley did have some degree of awareness and the ability to communicate, evolve, etc., then I'd probably have a different opinion.
 
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The Good People

New Member
I would hate to be put in that situation, the girl is basically just a vegetable laying there. Who would want to live like that? I would hope that if I ended up like that, someone would just put me to sleep.
 
ashliekay711

ashliekay711

New Member
The Good People said:
I would hate to be put in that situation, the girl is basically just a vegetable laying there. Who would want to live like that? I would hope that if I ended up like that, someone would just put me to sleep.
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what like a dog?! i don't think it works that way
 
T

The Good People

New Member
true, but didn't they do the same thing to that Schiavo girl (I think that was her name) they just pulled out her feeding tubes, and let her go, because there was never really anything there. I guess it could go alot deeper if your into religion.
 
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nitwhit3286

Guest
It is sad that this child is a vegetable..I mean there is no other way to say it. I mean were her parents saying..she is not a normal child so lets unable her to grow properly? They are right she isn't a healthy child at 9 years old still wearing diapers and has the mental capacity of a 3 month old. Its a real shame the parents are letting this girl live like this..but if you think about it Ashley will never be able to make up her mind. i think the parents feel so much guilt....that all they want to do is take care of their daughter for as long as they can. I am sure it is burdensome but I am sure that some medical matter happened during pregnancy with ashley to make her have this disorder.
 
SamSpade

SamSpade

Well-Known Member
PREMO Member
I'm impressed with this couple's desire to continue care for their child. If my wife and I were faced with a pregnancy and this handicap was known, I don't know if I would not opt for an abortion. We both know of a family that already deals with an almost identical situation - and they amaze me. It's one thing to be a parent to a 3-month old - but it's quite another to continue to provide the same kind of care for another ten years. To be deprived of the normal growing up of a child - part of the pride of parenting is to see your child grow, develop and be able to independently care for himself - from something as simple as potty training and tying his own shoes, to completing school, buying his own home and starting his own family.

These people will NEVER have this option - they will grow into old age with a daughter who will never be able to feed herself, talk to them or in any way interact with them on even a child's level. And they're willing to do what it takes to continue to do that.

I do not possess the ability to do that - I would almost certainly surrender such a child to institutional care - eventually. I could not care for such a child the rest of its life no matter how much I loved them.
 
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