Write your Congressman!

vraiblonde

Board Mommy
PREMO Member
Patron
Just received a note from a client:

Dear Friends and Business Associates,

Many of you may know, or have heard about, my friend, Kathy Baker, who passed away before Thanksgiving two short years ago. Kathy was a close friend and also was a REALTOR member of SMAR. If you know of her, you know that she was transfused with HIV tainted blood in 1979 as a result of a military doctor's consistent misdiagnosis of her ectopic pregnancy. Her second daughter, Richelle, was born about a year later and is also HIV positive.

I am sending you a link to a news story that aired on Washington's Channel 9 on Friday. (You may need to copy and paste it to your address bar.) If you take a minute to watch the video, I have no doubt you will feel compelled to help right this wrong.

Link to the brief video:
http://www.wusa9.com/video/player.aspx?aid=28814&bw=

Link to the written transcript:
http://wusa9.com/news/news_article.aspx?storyid=46930

In order to make it easy for you to help, I have provided you with a website (www.congress.org) where you can easily email your government representatives and the Department of the Navy officials who are currently considering whether or not they should break the commitment they made to the Bakers so many years ago. This promise was to provide Richelle with life long treatment and care related to her HIV infection which was a result of the medical malpractice committed by a military doctor.

Please watch this video and consider following the step by step instructions on the attached document to send a letter similar to the one I provide you with.

I will personally be grateful for your help. I am doing this for the memory of my friend and for the future of her daughters who I dearly love.

Call me if you have any questions. Thanks for your help! I hope I can count on you.

Rose M. Crowley
RE/MAX Top Professionals

Here's how you can help in practically no time at all! Review the sample letter (below) and personalize it as you see fit. If you know the Baker's, feel free to say so in the letter. Make sure to choose the correct items in the parentheses in the first paragraph and delete the one that doesn't apply. You can either follow the instructions below and email the letters to your representatives OR you can print out copies and mail them to your representatives. If you will be emailing the letters through the congress.org website, you will first need to copy the finished letter to your clipboard. Go to the following website and type in your zip code: http://www.congress.org/congressorg/home/

The website will direct you to YOUR federal representatives. Visit each individually, selecting "Compose Your Own Letter" and paste the finished letter in the text box making sure the letter is addressed to the correct recipient each time you send it. Select "Veteran's Issues" as the topic of your letter from the drop down list. You only have to type in your personal information one time. It will remember you if you ask it to. In additional to your federal representatives, including G.W. Bush, you can also select "Federal Agencies" from the left column in blue and then select Department of Defense from the "Department" box. After that, you can send to anyone you would like by clicking on the envelope beside their names.

I sent a letter to the following:
William Winkenwerder- Assistant Secretary for Health Affairs
J. Dorrance Smith- Assistant Secretary for Public Affairs
as I though they were the most appropriate people on the list. Under the list of their names if you arrow down, you will find another box. Within that box, you can select "Department of the Navy."

Here's where things get fun.

The first name on that list is Donald Winter who is the Secretary of the Navy who is actually reviewing Richelle's case. You should definitely send him one! I also sent a letter to Dionel Aviles , the Under Secretary of the Navy from there.

SAMPLE LETTER

Subject: PLEASE HELP THIS WOMAN!
Date: February 20, 2006

Dear (Senator, Congressman, Secretary, Mr., Mrs. etc.),

I wanted to bring your attention to a story I (saw on Washington D.C.'s Channel 9 News on Friday) OR (heard from a friend) about a veteran's family from Lusby, Maryland.

I found the story of Richelle Baker Starnes and her family to be both shocking and incredibly moving. She and her mother, Kathy Baker, were promised lifelong medical care related to the HIV tainted blood Mrs. Baker was given at a civilian hospital in Oakland, California in 1979. She had been rushed to the nearest hospital by ambulance after her ectopic pregnancy was repeatedly misdiagnosed by military doctors.

Mrs. Starnes was conceived two weeks after her mother received the HIV infected blood transfusion and subsequently born HIV positive. The Navy did keep their promise of lifelong care to Mrs. Baker, who died two years ago from Aides- many years after she was expected to die. Mrs. Starnes, however, has so far beat the odds and is living a normal life without Aides. She believes it's because of the quality health care she's received at the National Naval Medical Center (NNMC), the very care the Navy now wants to take from her.

Mrs. Starnes was recently notified that the Navy will be breaking the commitment they made to her parents by canceling all HIV related medical benefits she receives at NNMC for the past fifteen years. This cancellation will occur in June, just one month before the birth of her first child. Not only is she concerned about her own future, she is now concerned about receiving the best possible treatment during her pregnancy to insure her unborn child is born HIV negative. She needs the Navy to honor their promise to her mother. She needs them to DO THE RIGHT THING.

If an act of Congress can be obtained to allow a military dog to be retired early to help a wounded veteran recover from her injuries, Congress should also see Mrs. Starnes' situation as a no-brainer. Budget cuts are important to us all for the health of our country, but not when they put the innocent family members of our veterans at risk.

I would appreciate your looking into this situation and doing whatever you can do to help.

Also, here is a link to the news story that aired on Washington's Channel 9 on Friday. (You may need to copy and paste it to your address bar.) If you take a minute to watch the video, I have no doubt you will feel compelled to help right this wrong.

Clip to the brief video: http://www.wusa9.com/video/player.aspx?aid=28814&bw=
Clip to the written transcript: http://wusa9.com/news/news_article.aspx?storyid=46930

Thank you for your time.
 

Tina2001aniT

New Member
Wow, I went to school with/played soccer with her. I knew that the HIV was contracted from her mother through a blood transfusion during pregnancy, but did not know of the Navy's promise of medical care. Will definately have to send my letters.
But, on a softer note am so glad to know that she is doing well and still AIDS free.....:yay:
 

mAlice

professional daydreamer
While this is all very tragic, I find it very unlikely we're getting the whole story. First, I fail to see how the government (read: taxpayers) are responsible for the tainted blood that the patient recieved at a civilian hospital. Second, the patient is certainly free to seek a second opinion, which sounds like exactly what she should have done.

Mrs. Starnes was recently notified that the Navy will be breaking the commitment they made to her parents by canceling all HIV related medical benefits she receives at NNMC for the past fifteen years. This cancellation will occur in June, just one month before the birth of her first child. Not only is she concerned about her own future, she is now concerned about receiving the best possible treatment during her pregnancy to insure her unborn child is born HIV negative.

If Mrs Starnes is so concerned about her child having HIV, why is she having a child? If the child is born HIV+, does she expect the government to also foot those medical bills? Snowball.
 

Nickel

curiouser and curiouser
elaine said:
First, I fail to see how the government (read: taxpayers) are responsible for the tainted blood that the patient recieved at a civilian hospital.
:yeahthat:What happened to her mother is horrible, but it's not the Navy's responsibility to provide care for her if she is no longer a dependent. :shrug:
 

Tina2001aniT

New Member
Nickel said:
:yeahthat:What happened to her mother is horrible, but it's not the Navy's responsibility to provide care for her if she is no longer a dependent. :shrug:
I really wish I could remember the story......there is more to it....
I knew alot of the story as her mother and my grandmother were friends. It was a very tragic story, worthy of lawsuits galore, BUT all they asked for was that they (mother and daughter) have their medical bills covered for the HIV, as it was the cost they would incur because of the mistake/neglect/malpractice......and how that fell in the Navy hands versus someone else more responsible, I do not recall....
I will have to call my mom and see if she remembers the whole story....
 

Tina2001aniT

New Member
elaine said:
I disagree. The patient should have gotten a second opinion.
:confused: We are talking 30 years ago (almost), at that point, people didn't get 2nd opinions......Point being she through NO fault of her own was given HIV positive blood.....Wether she should have gotten a 2nd opinion or not is irrelevant, if she would not have gotten the tainted blood, someone else would have, and they would be dealing with this now.....
 

mAlice

professional daydreamer
Tina2001aniT said:
:confused: We are talking 30 years ago (almost), at that point, people didn't get 2nd opinions......Point being she through NO fault of her own was given HIV positive blood.....Wether she should have gotten a 2nd opinion or not is irrelevant, if she would not have gotten the tainted blood, someone else would have, and they would be dealing with this now.....

Of course they did. :lmao: And the tainted blood was given to her at a civilian hospital.
 

Nickel

curiouser and curiouser
elaine said:
I disagree. The patient should have gotten a second opinion.
If she went to a military hospital several times, it is likely that she saw several different doctors. The link to the news story implies that she was seen once and misdiagnosed, the quote Vrai received implies she saw the same doctor at a military facility on more than one occasion (something I've never managed to do during my 21 years of being a dependent. :shrug:) So who knows, there probably is more to the story.
 

Tina2001aniT

New Member
elaine said:
Of course they did. :lmao: And the tainted blood was given to her at a civilian hospital.
Like I said, I don't remember the whole story, it is not my story to tell anyway.....I just think that you are being pretty judgemental...This woman was GIVEN HIV.....

Are you saying that they should pay for their HIV/AIDS care themselves? Or that the doctor or responsible party should pay for it versus the Navy paying??
 

vraiblonde

Board Mommy
PREMO Member
Patron
The daughter's complaint should be against the hospital that gave her mother the tainted blood, and her care should be financed by them.

The Navy is responsible for misdiagnosing the pregnancy, but that would have nothing to do with the daughter.
 

mAlice

professional daydreamer
Tina2001aniT said:
Like I said, I don't remember the whole story, it is not my story to tell anyway.....I just think that you are being pretty judgemental...This woman was GIVEN HIV.....

Are you saying that they should pay for their HIV/AIDS care themselves? Or that the doctor or responsible party should pay for it versus the Navy paying??


She was not given HIV by the NAVY. She did not get the blood transfusion from the NAVY. I don't care how they pay for it, but this woman should not be getting pregnant knowing that she has HIV. How stupid is that? And yes, they should have sued the hospital in the first place.
 

Christy

b*tch rocket
Just curious, but did they even screen for HIV back in 1979? Wasn't it brand new back then and not a whole lot was known about it, or how it was transferred.

Sad story.
 

mAlice

professional daydreamer
Christy said:
Just curious, but did they even screen for HIV back in 1979? Wasn't it brand new back then and not a whole lot was known about it, or how it was transferred.

Sad story.


I don't think they had even given HIV/AIDS a name in '79.
 

Christy

b*tch rocket
elaine said:
I just watched the video. Rochelle KNOWS she has HIV, and she's having a child. :rolleyes:
I think they can do a whole lot more these days to prevent it from being passed on to the child. I guess it goes along the same lines of choosing to take the risk of having a child when there are known genetic disorders in a family. :shrug:
 

mAlice

professional daydreamer
Christy said:
I think they can do a whole lot more these days to prevent it from being passed on to the child. I guess it goes along the same lines of choosing to take the risk of having a child when there are known genetic disorders in a family. :shrug:

But if you choose to take that risk, you should also be willing to shoulder the financial burden, not expect the taxpayer to.
 

vraiblonde

Board Mommy
PREMO Member
Patron
elaine said:
Rochelle KNOWS she has HIV, and she's having a child.
The baby won't necessarily be born with HIV, if the mother has proper treatment. But I agree with you that the hospital responsible for giving her mother the tainted blood should be held liable.

That said, I have no real problem with the Navy (read: us) paying for it. The father served, and I'm okay with picking up the cost of his daughter's HIV treatment.
 

vraiblonde

Board Mommy
PREMO Member
Patron
Christy said:
Just curious, but did they even screen for HIV back in 1979?
Nope - it wasn't recognized until 1981. The mother/daughter didn't find out they were infected until 10 years later.
 
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