You certainly have an extreme situation and I'm not sure why anyone would want to "shame" you for something that isn't your fault, and that you're trying to deal with. There should be sympathy, not condemnation. I like to reserve my condemnation for those whose children aren't mentally ill and only need a firm parental hand that they're not getting.
Making THAT determination doesn't always arrive at the truth - my kid doesn't "look" like he's mentally ill - most of the time, he just seems immature.
My son is a much milder version of this - but it's been trending worse over the past several years. I've mentioned his condition before and he was born with it.
Mixed with puberty, and it's beginning to get very, very difficult. He's starting to just refuse, and punishment of any kind is beginning not to bother him at all.
And I can say it DOES happen that no matter how much progress you make, there are always people in his life whom - over time - become convinced that YOU are the problem and not the child. Usually these are people who have never experienced a child with special needs like his - or worse, never had kids.
Some think he just doesn't get enough discipline - and I can tell you clearly that he almost never learns from the consequences of his actions. Try to think of a kid who continually pets a dog who bites him, or puts his hand on a hot stove - and after screaming - does it again (unlike a normal child who would almost certainly refuse to ever touch a dog or be near a stove).
Some will think you don't put enough time into them - until they watch you spend two or three hours a night with their homework, or hours on end teaching them to tie their shoes (and finally succeeding - after six years).
The people who are the MOST helpful are parents and persons who have a LOT of experience with such kids. I'm drawn to them like a magnet. They don't always have answers, but they know what you're going through. I can tell you they are some of the best parents, PERIOD.